@AndyPR @trishrhymes In terms of the human interest story, you're right there's a reason my photo kept popping up. We were prepared for the fact there may be a backlash but knew human interest stories get more coverage and sympathy. We want to keep this up in Scotland and will keep trying to get other people's stories out there, it's harder to hate a community you can put a name, face and story to.
As with any sort of success, luck, priviledge and connections play a big part.
We've learnt a lot and happy to share our strategy. I do think Phoenix Rising community is a newsworthy community in itself? Especially Prof Edwards involvement, his retirement and his support/fight for ME patients. Either a story focussing on or featuring P.R community, Prof Edward or Dr Shephard is interesting and definitely newsworthy. Don't know if P.R, Prof, Dr Shephard or any of you individually particularly want to be in the news/articles but there are several potential stories to consider.
In terms of patient's stories @Countrygirl comes to mind. I don't know many of your stories, it would be interesting to hear others. Local news is an excellent idea.
We're trying to set up MEAction in Scotland and focus energy on what to do next. Having a weeks rest so probably won't reply for a bit.
Just want to say a big, big thank you for positive comment on here. It's so nice being a part of a supportive community . Sticking my neck up and appearing in press, I was prepared for and have received negative comments and some abuse. I don't give a crap as think I think what we're fighting for is much bigger than my ego but still it's nice to know that support far outweighs the negativity.
@AndyPR that's awful. Must be really stressful. Can't believe you're always so positive considering everything that's going on.
As with any sort of success, luck, priviledge and connections play a big part.
We've learnt a lot and happy to share our strategy. I do think Phoenix Rising community is a newsworthy community in itself? Especially Prof Edwards involvement, his retirement and his support/fight for ME patients. Either a story focussing on or featuring P.R community, Prof Edward or Dr Shephard is interesting and definitely newsworthy. Don't know if P.R, Prof, Dr Shephard or any of you individually particularly want to be in the news/articles but there are several potential stories to consider.
In terms of patient's stories @Countrygirl comes to mind. I don't know many of your stories, it would be interesting to hear others. Local news is an excellent idea.
We're trying to set up MEAction in Scotland and focus energy on what to do next. Having a weeks rest so probably won't reply for a bit.
Just want to say a big, big thank you for positive comment on here. It's so nice being a part of a supportive community . Sticking my neck up and appearing in press, I was prepared for and have received negative comments and some abuse. I don't give a crap as think I think what we're fighting for is much bigger than my ego but still it's nice to know that support far outweighs the negativity.
@AndyPR that's awful. Must be really stressful. Can't believe you're always so positive considering everything that's going on.