Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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BBC radio doco - "In This World, But Not Of It"

Discussion in 'Spirituality and ME/CFS' started by Sean, Jun 16, 2014.

  1. Sean

    Sean Senior Member

    Some interesting comments from people who have walked more than a few hard and solitary yards in life, including from somebody with ME.

    Only available online for another 6 days.
    Sasha likes this.
  2. Sasha

    Sasha Fine, thank you

    I accidentally caught the end of this, I think, last night and wished I'd heard the whole thing because I recognised my own situation of extreme isolation (I'm too sick for more than three hours/week of face-to-face social contact and have been so for years now). There were some very interesting comments - I'll look forward to listening.
    Battery Muncher and Sean like this.
  3. SDSue

    SDSue Southeast

    Interesting program. I loved the musical interludes.

    It's fascinating to me that some would choose isolation. Perhaps it is just that - they could choose it, which means they could then choose to return to society at any time.

    We haven't the choice, and that's quite a different thing. This disease has taken many things, but it's the human connections that I miss the most. It's the lack of human touch and human smiles that leaves me questioning my own sanity and, on bad days, wishing for an out.
    maisiE, ahmo, maryb and 2 others like this.

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