BBC interview with Ron Davis

[Jo Best]

Thank you @TillyMoments and all the parents, including Ron Davis of course, who assisted or agreed to be interviewed for this programme. I think it is pertinent for the journalists to be made aware of the research for this programme for the very reason that parents are so directly involved in doing the research or in making it happen. It helps give the lie to the false notions of FII and to show a completely different side to the story. Thank you to Richard Simpson, trustee of Invest in ME Research, for arranging the interviews with Dr. Davis and the others.

For this programme Invest in ME Research prepared interviews at our recent BRMEC7 Colloquium in London.

At short notice (as the reporter had not seemed to have been informed of our Colloquium/Conference beforehand) we organised interviews with paediatrician Dr Kristian Sommerfelt from Norway, Dr Amolak Bansal from Epsom and St. Helier NHS Trust, Professor Ron Davis of Stanford and Kjersti Krisner from Norway.

We also invited the reporter to our IIMEC12 conference the next day where he interviewed Dr Nigel Speight and David Tuller.

We have no way of knowing if any of the relevant interviews were used.
But at least the reporter is now aware of IiMER and our Colloquiums and Conferences, and our Centre of Excellence for ME and our campaigning and our supporters.

The programme will be broadcast on 27th June

http://www.bbc.co.uk/programmes/b08vyly5

(Source: posted earlier by Invest in ME Research in their Facebook group)

 

[Wolfiness]

I understand that it's not what the programme is "about " but I would hope it would get a mention. …

Yes. Otherwise people will say "But if there's no other promising avenues of research you might as well keep trying to improve CBT/GET." It is a classic PACE circular argument.

 

[Binkie4]

Action for ME has announced on its fb page some details about this programme which apparently includes details of a survey they have conducted with parents of children with Me.

How they wil deal with their links with EC who is their adviser on children , I don't know, unless EC's role in all this is ignored by the programme.

https://www.facebook.com/actionforme/?fref=ts

It's the second item down if anyone wants to read it.

EDIT: http://forums.phoenixrising.me/index.php?threads/radio-programme-on-children-with-me.52346/

This is another thread devoted to this, link above. Apologies for double post.

 

[Esther12]

Action for ME has announced on its fb page some details about this programme which apparently includes details of a survey they have conducted with parents of children with Me.

How they wil deal with their links with EC who is their adviser on children , I don't know, unless EC's role in all this is ignored by the programme.

https://www.facebook.com/actionforme/?fref=ts

It's the second item down if anyone wants to read it.

As ever, I expect that EC will see any problems as evidence of the need for more spending on specialist services (like hers), maybe with more money for training (designed by her) too. It certainly couldn't be a result of any problems with her work.

 

[Forbin]

Yes. Otherwise people will say "But if there's no other promising avenues of research you might as well keep trying to improve CBT/GET." It is a classic PACE circular argument.

It's like a group of architects in the 1920's trying to put a man on the moon by designing taller buildings - because that's what they know how to do. They keep getting funded because they can accurately report that they're "getting closer all the time." Meanwhile, rocketry research goes unfunded.