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BBC Article: Carers of children with ME 'accused of fabrication'

Discussion in 'General ME/CFS News' started by Hip, Jul 3, 2017.

  1. Hip

    Hip Senior Member

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    Carers of children with ME 'accused of fabrication' - BBC News

    I'd like to hear the response from NHS England, and what they say about the fact that NHS medical professionals are accusing parents of children with ME/CFS that they are fabricating their child's devastating ME/CFS illness.
     
    Last edited: Jul 3, 2017
  2. aaron_c

    aaron_c Senior Member

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    I'm appalled that 30% of the cases were NOT dropped within a year. And I wonder how many of the 70% of cases were dropped because the child had a temporary recovery...which is great, but might leave the family open to further abuse if the child relapses. Or how many were dropped because they successfully bullied the family into making their child do GET?
     
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  3. sarah darwins

    sarah darwins I told you I was ill

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    Just in case anyone hasn't followed the link, this brief report is a trailer for a radio programme tomorrow evening (UK time):

    An investigation of the survey and treatments for ME is on Radio 4's File on 4 on Tuesday at 20:00 BST.

    @Hip - I would hope there would be an attempt in the full radio programme to get a reaction from the NHS, among others.
     
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  4. SamanthaJ

    SamanthaJ Senior Member

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    I don't think the ME episode is on this week, it aired last week but is available online: http://www.bbc.co.uk/programmes/b006th08
     
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  5. Hip

    Hip Senior Member

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    A direct link to the BBC radio program (37 minutes long) is found here.

    An article on the Action for ME website about their survey and the BBC radio program is here.

    The radio program talks about fabricated or induced illness (FII), which was previously known as Munchausen syndrome by proxy.
    The program talks about how parents of children with ME/CFS are being accused of causing fabricated or induced illness in their child, in spite of the fact that FII is a very rare condition (Sonya Chowdhury points out that the Department of Health say there are only about 50 actual cases of FII a year).

    In the radio program, Sonya Chowdhury says that in 70% of these accusations of FII, the subsequent "safeguarding referral" investigations that the health authorities make into the parents are being dropped within a year, suggesting that the original accusation was wrong.
     
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  6. Richard7

    Richard7 Senior Member

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    I wished they had asked why the nurses and sociologists think that a condition as rare as FII is a more likely reason for a child being away from school than ME.

    I do not know enough to know is those 50 cases per year in the UK are certainly FII or if this number is inflated by people are who unable to convince doctors that it is something else. But even if you take it on face value it should be incredible that all of these nurses and social workers know so much about and are so concerened about a one in a million illness when they do not know enough about an illness as common as ME.

    I say it should be incredible, but of course everyone here has had the misfortune of being forced to know better.
     
  7. Chrisb

    Chrisb Senior Member

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    This would seem to explain the apparent anomaly in the obvious omission in the last programme. It's surprising that there was no trailer for this new programme to overcome the muted criticism, and to ensure that the interested audience would be aware of it.

    Views about the BBC may have to be changed. It is appearing less monolithic.
     
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  8. PeeWee

    PeeWee

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    There is only the one File on 4 programme, which aired last week & is available on the link in post 4. Tonight's File on 4 is about mental health.
     
  9. sarah darwins

    sarah darwins I told you I was ill

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    Ah, okay. Hadn't noticed the date on the article (June 27).
     
  10. slysaint

    slysaint Senior Member

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    Hip likes this.

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