Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data
The Microbe Discovery Project outlines an ambitious new study by top researchers that has collected patient samples, but needs desperately funds to complete the work.
Discuss the article on the Forums.

Bateman Clinic Question

Discussion in 'ME/CFS Doctors' started by Billt, Jun 21, 2016.

  1. Billt

    Billt Senior Member

    Messages:
    253
    Likes:
    389
    New Orleans
    Considering trying to make an appointment here for my son. Just wondering if anyone has any insight or experience here. Can't find much on here from anyone who might have went there.

    Feel free to PM if that would be better. Thanks in advance.... Billt
     
    merylg and perrier like this.
  2. Sushi

    Sushi Senior Member Albuquerque

    Messages:
    14,106
    Likes:
    21,338
    Albuquerque
    Last I heard there was a waiting list for the waiting list. A few members have been there though so maybe they can say more.
     
    Billt likes this.
  3. Billt

    Billt Senior Member

    Messages:
    253
    Likes:
    389
    New Orleans
    Thanks sushi, I have not called them yet but I thought it could be a forever wait list. Seems like most of the doctors we discuss here are getting harder and harder to see. And some will not even take new patients !
     
    Justin30, Kati, merylg and 1 other person like this.
  4. PNWMom

    PNWMom

    Messages:
    13
    Likes:
    89
    My daughter is a Bateman patient. My understanding is that they may have a new clinician working to shoulder the patient load. They are typically more willing to bring in patients that have some infrastructure in terms of primary care or specialist support in their hometown. The clinic can't provide primary care services. They will also take patients based on what they need in research, what type of diagnostics have already been completed and patients that fit a certain profile--they prioritize patients they believe they can help. I don't know what that profile is--part of them making that determination is in the intake process. The waiting list isn't a waiting list done by "first come, first served." My daughter was seen more in the beginning of her diagnostic process. Now she averages a couple of visits a year, maybe a Skype visit and some email conversations. It is worth starting the process. Contact them, fill in their online info and see where it takes you. You may be seen faster than you think.
     
  5. Billt

    Billt Senior Member

    Messages:
    253
    Likes:
    389
    New Orleans
    Very interesting. Thank you for the reply
     
  6. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    9,101
    Likes:
    23,225
    USA
    @Billt I hope you are able to get into the Bateman Clinic or whichever place you feel is best for your son without too much hassle. Am wishing the best for both of you as always.
     
  7. PNWMom

    PNWMom

    Messages:
    13
    Likes:
    89
    And to be absolutely honest, I love Dr Bateman. She has been our personal angel throughout this hell we all know as ME/CFS. If you can get into her clinic, know that you will be treated with respect and kindness. They will do the best they can with whatever your son's circumstances. Dr B is a passionate and skilled clinician/diagnostician. The people who work with her are equally committed to their work.

    That being said, I would advise anyone seeking ME/CFS treatment to get on the wait list of any specialist's clinic that is willing to add you. Whoever can see you first is where you start. We had an unusual referral to Bateman Horne because my daughter's primary care nurse practitioner had an adult daughter who was treated by BHC. Living in Europe when my daughter got sick (her initial diagnosis was at the Royal Free Hospital in Hampstead UK), we were quite clueless about who Dr B was in the greater ME/CFS community.

    Once we repatriated, Dr B picked up after the initial diagnosis was made. We brought her several years of labs--including some very detailed immunological studies--as well as reports from multiple endocrinologists, immunologists and pediatricians. I think having a large paper trail made it easier for her to accept my daughter as a patient because so many issues had already been ruled out.

    Good luck!
     
    Sushi likes this.
  8. Billt

    Billt Senior Member

    Messages:
    253
    Likes:
    389
    New Orleans
    Thanks Gingergrrl !!! We are trying everything and anything we can. And will keep trying as long as I can.
    Hope you are getting closer to IVIG. !!!


    PNWMom . Thank you so much for the reply .. We do have a pretty long doctor and paper trail so maybr that will help. We have already been to a specialist and have tried many things so hoping a new doctor would have a different prospective . I am going to call and a least start the process and see how it goes from there..
     
  9. perrier

    perrier Senior Member

    Messages:
    470
    Likes:
    774
    I find it so discouraging that the doctors aren't working more closely. In the end, we run here and there exhaust life savings and our children still suffer. But these are positive reports about Dr Bateman.

    With such a dreadful illness it's paramount that doctors work together.
     
    Justin30 and Billt like this.
  10. Billt

    Billt Senior Member

    Messages:
    253
    Likes:
    389
    New Orleans
    I could not agree more.
     
  11. Billt

    Billt Senior Member

    Messages:
    253
    Likes:
    389
    New Orleans
    Well ,, got the official email from Bateman today. They very politely told me they won't take us. Very nice but I guess we don't fit the profile they are looking for.
    Can't believe it is this hard to find a doctor !!!!! frustrating but won't quit ...
     
    Sushi, Comet, RL_sparky and 2 others like this.
  12. sarah darwins

    sarah darwins I told you I was ill

    Messages:
    2,446
    Likes:
    10,386
    Cornwall, UK
    Billt, I didn't 'like' your post because they said No! It's just appreciated when someone comes back to a thread like this to post an update.

    Good luck with the search. There's someone out there for you guys ...
     
    Comet, RL_sparky, Gingergrrl and 2 others like this.
  13. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    9,101
    Likes:
    23,225
    USA
    Am sorry @Billt but I know you are stubborn like me and will not give up the fight. We are in this together :hug:. I also liked your post for support and not b/c I liked the news.
     
    Billt, Comet, RL_sparky and 2 others like this.
  14. ebethc

    ebethc Senior Member

    Messages:
    1,185
    Likes:
    768
    what are they looking for??
     
  15. Billt

    Billt Senior Member

    Messages:
    253
    Likes:
    389
    New Orleans
    Only said that they take 10-20 % of applicants. They won't tell you exactly what they want or don't what. I'm sure with so many people looking, they can afford to be picky ! Guess I can't blame them. They did let me know that they would keep out info though..
     
    ebethc likes this.

See more popular forum discussions.

Share This Page