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Bartonella Rash reappearing...

Discussion in 'Lyme Disease and Co-Infections' started by soxfan, Mar 3, 2015.

  1. soxfan

    soxfan Senior Member

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    I live in NC but my Lyme doctor is in NH. Back in October I started on abx again for what I presumed was my Lyme symptoms coming back. A month after on abx a rash appeared on my back which is where I was originally bit in June of 2012. We took pictures to show the doctor. It was blotchy, streaky and had "cat scratch" like marks.
    It would last 4 or 5 days then scab over and disappear. This went on every month and we were sure to take pictures.

    I wasn't feeling any better on the abx so when I went to see my doctor last week I had every intention of giving up the meds and saying thanks to the doctor. Well on the day of my appt. luckily the rash was in full bloom. He finally got to see the rash in person and said immediately it was a Bartonella rash.

    He has now put me on Rifampin and Factive which is a combo I have not had before. I previously was on Zithro and Bactrim which did nothing.

    I still feel that CFS is my main illness and no amount of abx is going to help with my most disabling symptoms. I will give this another go and see if it helps in any possible way. Even 10 percent would be a help....I am not sure why this rash keeps appearing but seems to only happen when I am taking abx so I am assuming the meds are stirring up the infection and presenting itself as a rash or it is a herx appearing as the rash.
     
    MEMum, merylg, Sushi and 2 others like this.
  2. bmoberg337

    bmoberg337

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    I think you are on the right track. ILADS suggests the use of a bactericidal abx along with an intracellular abx (specifically 2nd-3rd generation quinolones).
    http://www.ilads.org/lyme/treatment-guideline.php

    The first combination your doctor put you on did not include an intracellular abx which is a problem because Bartonella is an intracellular pathogen.

    I was on cipro and clarithromycin for 4 months and had a remarkable drop in my antibody levels to bartonella, but without symptom improvement. I have now been on zithro and tinidazole for 3 months and the infection continues to resolve but has not been eliminated. All this to say that it takes time and is definitely worth eradicating. It may also be worth your time to see if you have any other co-infections.
     
    soxfan likes this.
  3. Ema

    Ema Senior Member

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    It looks like you're on a good Bart combo now!

    Rifampin can increase cortisol clearance so if you have adrenal issues, be mindful of the symptoms of low cortisol and discuss with your doctor if you see any worsening.


     
    merylg, Hanna and soxfan like this.
  4. Ema

    Ema Senior Member

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    Azithromycin is an intracellular antibiotic. However, it may not be the best choice against bart.

    It seems to be somewhat more effective when combined with Plaquenil or amantadine to increase the intracellular pH.
     
  5. Sushi

    Sushi Moderation Resource Albuquerque

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    How is the Rifampin going? This is a drug I had to "ease into" raising the dose slowly to tolerate it.
    My doc asked me to do a cortisol test because of this. Well, the kit is still sitting there but I'll do it soon.

    Sushi
     
    soxfan likes this.
  6. soxfan

    soxfan Senior Member

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    I have been on Rifampin before....I never really had any problems with it other than it use to interfere with my sleep medication. I no longer take Lunesta so I won't have any issues with that. I haven't started it this time around yet because the pharmacy had to order the Factive which won't be in until tomorrow.

    I really don't have much confidence that I am going to feel better since I still believe my major symptoms are CFS related but I am willing to give it another try.

    I have also had at least 3 cortisol tests done over the years and no matter what I am taking (example cortef) my levels never change so I am not too confident in those tests....
     
    Sushi likes this.
  7. JaimeS

    JaimeS Senior Member

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    Weird experience in response to my (admittedly heavy-duty) probiotics: I had a rash re-appear at the site of a bite. It's a bull's-eye rash that I thought might be Lyme. It just... reappeared a few days into probiotic treatment. It's definitely not a 'second' bite, it's in the exact same spot.

    Could this be Bartonella? And does anyone know WHY this is happening? It seems really weird to have a re-activation of the initial immune response as part of the bacteria dying off, doesn't it?

    [Edit: I am taking a pretty high dose of Lactoferrin, too; this could actually be immune re-activation at the site.]

    -J
     
    Last edited: Aug 6, 2015
    merylg likes this.
  8. JaimeS

    JaimeS Senior Member

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    Finding out more, I discovered a study with some very smug experts who state that this is the result of a second bite rather than the same infection, and that doctors should "keep doing what they're doing" because this "proves" there is no such thing as chronic lyme. :rolleyes:

    Welll, mine's in the exact same spot, so no. :rolleyes::devil:o_O

    Wow, my hand slipped so those three faces are totally random, but strangely appropriate. ;)

    -J
     
    merylg likes this.
  9. Valentijn

    Valentijn Senior Member

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    My Bartonella rash spreads when I start new antibiotics which impact it. The first time was several years pre-ME, then when taking doxycycline for a long-term sinus infection after being sick for a couple years, and again when I started Lyme and then Bartonella treatment.

    Some of them come through my skin, creating an open sore which then scabs over. But that's only started pretty recently, with Bartonella-specific treatment.

    I don't know where my infecting tick bite was. I had dozens, maybe even hundreds of tick bites while living in the woods in Southern Oklahoma for two years.
     
    merylg likes this.
  10. JaimeS

    JaimeS Senior Member

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    I can't 'like' that you got hundreds of tick bites, @Valentijn , but I appreciate you sharing your story!

    -J
     
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  11. soxfan

    soxfan Senior Member

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    I haven't had any break out of the rash in months but I don't feel any better...being on the rifampin and levaquin totally stopped the rashes from appearing. I still have the same symptoms though...chronic fatigue...nerve pain...overstimulated nervous system...poor quality sleep. I quit all medications months ago because the doctor advised me too.. The only thing they did was give me relief from the rashes on my back where the original bite was in 2012.
     
    Valentijn and Hanna like this.
  12. JaimeS

    JaimeS Senior Member

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    The 2013 bite mark is still there as of today. It doesn't look like it's getting any better. :(
     
    Valentijn likes this.
  13. JaimeS

    JaimeS Senior Member

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    Searching for some other reason, I found this post. The bite is gone now, even though I'm still taking probiotics and Lactoferrin.

    Lactoferrin is a pretty heavy-duty immune activator, or it was for me, despite the fact that it is OTC. There was a bit where I was dividing the powder in half and putting it back into smaller gelatin pills, but I didn't have to do this for long. Now I'm pretty tired without it. :)
     

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