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Bartonella now found in 20% of PWC's

Discussion in 'Latest ME/CFS Research' started by cigana, Aug 1, 2012.

  1. cigana

    cigana Senior Member

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  2. Legolas

    Legolas

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    DML recently - since collaboration with a veterinary insitute/lab - found a lot of people with ME to have a Bartonella infection (not Henselae but another one). If i recall well, he has found allready 400 patiƫnts to have this infection.
    L'engle and Enid like this.
  3. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Hi Legolas,

    Did he find that you also have Bartonella? If so, may I ask what treatment you are on?

    Thanks,
    Sushi
  4. Legolas

    Legolas

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    yes, i have it too.

    I intially had to take doxyciclin and azythromycin for 8 weeks. I couldn't tolerate the azythro, wich i stopped after a week ( did continue the doxy). Now i'm on rifampicin (8w) and avelox (moxifloxacin)(12days a month, 2months). Others also have to take plaquenil.
  5. Captain-Ger

    Captain-Ger

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    Hi Legolas,

    how it goes with avelox (moxifloxacin) and rifampicin? Dose?
    You feel something?

    Thanks, C
  6. cigana

    cigana Senior Member

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    He found I had Bartonella Henselae, started me on AB's like Legolas.
  7. Captain-Ger

    Captain-Ger

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  8. cigana

    cigana Senior Member

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    I'm only a week into treatment! So no change...
  9. Captain-Ger

    Captain-Ger

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    are you also in treatment by prof. kdm?
    what is your dosage?
  10. cigana

    cigana Senior Member

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    Yes, he put me on Doxy and Azithromycin. I will PM you the doses. I also have Rickettsia, so this may actually be what he is treating, I don't know...
  11. Legolas

    Legolas

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    Moxi 400 mg (12 days/ month, 2 months)
    Rifampicin 300 mg (8 weeks)
    both 1/day

    I had improvement before with doxy and azythromycin. Because i didn't tolerate the azythro (or was it a herxheimer??), he switched me to the meds above.I recently started taking liposomal glutathion (wich helps if i take it in the right dose), so it's hard to tell wether these AB give me an additionel improvement or not.
    At his consultation he mentioned Plaquenil, but didn't prescribe it, maybe it's for next moth, dunno.
  12. Captain-Ger

    Captain-Ger

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    Interesting. I'm on:
    2 x Mino/day
    1x Azi/day
    2 x Quensyl/day

    I am at the beginning of October again by KDM.
    I had Herxheimer for 10 days beginning on, I think!??
    Peviously (5 weeks) I feel nothing.
  13. Hip

    Hip Senior Member

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    This is an interesting paper on how Bartonella may be linked to agitation, panic disorder, and treatment-resistant depression.

    Note that this paper says:
    merylg and GhostGum like this.
  14. GhostGum

    GhostGum Senior Member

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    Vic, AU
    I just found this so comical I could not stop laughing, has made my night.

    They are so insightful aren't they.

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