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Bartonella- Dr. B. Robert Mozayeni

Discussion in 'Lyme Disease and Co-Infections' started by ana_bxl, Dec 21, 2012.

  1. ana_bxl

    ana_bxl

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    Hi everybody! After many years of being diagnosed with CFS, I have been recently tested positive for Bartonella. I think my doctor is a very good practicioner and also, I think the treatment is pretty standard. Now that " I saw the light at the end of the tunnel",though, I do not wanna miss anything! I have heard that Dr. M is the best you can get when it comes to Bartonella. Do you have any feedback? Do you think it is worth to visit him? Thanks a lot in advance for your help!! :)
  2. AFCFS

    AFCFS Senior Member

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    I do not have personal experience with Dr. M, but just to throw another option out there, may be worthwhile to query Dr. Jemsek's services at the Jemsek Specialty Clinic. I also have no personal experience with him, but I did have a doctor suggest him for possible Lyme/Tic borne illness. Since you may be considering Dr. M in Rockville, MD, Dr. Jemsek seems relatively close by; I believe he is in DC.
  3. acer2000

    acer2000 Senior Member

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    Which species of Bartonella did you test positive for? I'm curious what Dr. M's proposed treatment would be.
  4. ana_bxl

    ana_bxl

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    Thanks guys for your responses. I do not know what species I am positive in, my doctor told me there are 23 species of Bartonella and mine was one of the 21 that are most uncommon.....
  5. soxfan

    soxfan Senior Member

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    I have been treating bartonella off and on for 5 years...I,was recently re infected again and going through it again. I can't seem to get rid of it. I am curious as to what you will be treating it with..I was recently on rifampin and factive.
  6. soxfan

    soxfan Senior Member

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    I am going to be retested in 2 weeks and see if it is still active. The treatment has been tough so I actually quit so I can retest..having it done through arup and also galaxy.
  7. Vojta

    Vojta

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    I'm most likely infected by bartonella too. I have just received PCR test result which was in grey zone. According prof. Meirleir I likely have some uncommon strain. I'm negative in current serology test.
    I can't help you with US docs but I'm also curious how it is treated elsever.
    I'm going to begin antibiotic treatment asap.
  8. Clodomir

    Clodomir In hibernation mood

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    Hi Votja,

    Which lab has test you positive? Redlab or an other one? And how many time did you wait to have the result?
    What kind of treatment did KDM propose?
    I am interested because, I just did the test for the second time ( first I was negative, but he think, it was maybe a false negative...)

    Have a nice day and a happy new year

    Clodomir
  9. Vojta

    Vojta

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    Hi Clodomir,
    it was PCR test for Bartonella sent to Redlabs but on the result there is remark that the test was done at University in Liege by GIGA sequencing. I found out GIGA is research institut. It lasted 2 months.
    This should be some new test because I was negative by PCR done in Redlabs in the past too.
    This new result was "grey zone" with normal range "negative". I don't know what it exactly means. But in the report is that it is likely uncommon bartonella strain. Proposed treatment is
    zithromycin and Rifampicin for 8 weeks. But I was taking azithro alone and with doxy few times before with no effect.

    Happy new year.
  10. Lala

    Lala Senior Member

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    I am on strong bartonella combo too for a long time and I can't seem to get rid of it either. Tested positive for henselae and quitana. Two months of treatment are joke for chronic people.
  11. Lala

    Lala Senior Member

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    What dose and for how long have you been taking?
  12. Clodomir

    Clodomir In hibernation mood

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    Thanks for the info, Votja.

    Hope the treatment will work for you.

    Have a good day

    Clodomir
  13. soxfan

    soxfan Senior Member

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    Treating Henselae as well. I was on 600mg Rifampin twice daily and one Factive 320mg. I am being retested next week because I am not totally convinced I still have active infection and not just permanent damage.....
  14. Lala

    Lala Senior Member

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    That´s a lot!
  15. soxfan

    soxfan Senior Member

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    Yes...it was brutal. That is why I wanted the re-test. If I am going to go through the treatment I want to be fairly certain it will do some good!
  16. Lala

    Lala Senior Member

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    I am on mino, azi, rifa, art and still symptomatic. I do not test anymore as tests are notoriously unreliable here.
  17. acer2000

    acer2000 Senior Member

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    FWIW I took 9 months of Rifampin and Zithromax for a positive Bartonella Vinsonii subs. Berkoffi infection about 2 years ago. Previously, Zithromax made me feel better. The treatment did make some of my cytokines calm down, but I didn't really feel much better. Its not clear that I was treated correctly though. I have been contemplating getting another opinion to try to get a better understanding of this issue.
  18. Captain-Ger

    Captain-Ger

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  19. ana_bxl

    ana_bxl

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    I guys,I am doing fine. Still with symptoms but improving step by step...how come I did not receive any notifications until now??! I may have the settings wrong or something.....
  20. Captain-Ger

    Captain-Ger

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