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Bad reaction after dentist's visit 2 weeks ago, going again tomorrow. Anesthetic?

Discussion in 'General ME/CFS Discussion' started by Oak, Jun 6, 2017.

  1. Oak

    Oak

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    Okay, so I'm going to the dentist's again tomorrow and am very anxious and need to get that under control so that I can actually make myself go!

    Background:

    I've been ill for 7 years, moderately for the first 5 years, now severe for the last 2 and housebound other than occasional hospital appointments for the last 15 months. Often bedbound, almost always in reclining chair, standing only to go to the bathroom or sometimes to go into housemate's rooms etc. For things like the dentist I am pushed in a wheelchair and then climb onto the dentist's chair.

    Dentist visit 1 in December 2016 - nothing remarkable. Had heard local anaesthetic with adrenaline was not good for people with ME so asked for one without and had one without afaik. Added this info to my records with the dentist. Had my usual expected PEM the days afterwards, extra weakness and being bedbound etc.

    Dentist visit 2 in April 2017 - nothing remarkable again. Mentioned no adrenaline at the beginning again and they agreed. They had some trouble numbing me which I suspect could be because between Dec 2016 and then I've started on a pretty high dose of CBD oil. Standard usual PEM the days after.

    Dentist visit 3 in May 2017 - I experience an extra jolt of anxiety during the procedure. I mention it to the dentist so that I can have a quick sip of water and she says 'oh it's probably the adrenaline in the anaesthetic'. I'm shocked and said it was supposed to be on the notes that I shouldn't have it and she replied that I'd had it last time. I try to calm myself and get on with the procedure. I'm kind of dizzy feeling after but still not that unusual due to exertion and anxiety.

    When I get home I can barely climb the stairs and the friend who took me to the appointment has to help pull me upstairs and once I collapse on the bed has to remove my shoes and glasses for me and cover me with a blanket. I was terrified mentally but physically felt completely helpless and almost paralyzed. I couldn't really move my limbs or roll over. I could barely speak and was slurring and mentally couldn't remember how to speak much. A part of me wondered if I might be dying I felt so awful. Thankfully I fell asleep. After two or three hours my friend woke me up to get me to eat as it was evening and I've only had breakfast that day because of this. It takes a while but I manage to eat some food and rest in bed hazily for the rest of the evening. I'm comparatively fine the next day other than my usual level of PEM.

    What happened to me?

    I rung the dentist and she assured me she'd never heard of anything like this and that I'd had the adrenaline containing anesthetic that second visit because the adrenaline free one hadn't been working properly. But would she really have done this having agreed to a non adrenaline anesthetic at the beginning? My personal theory is that she's got confused and only given it to me that third time and that that's what caused the reaction.

    Basically, I really need to go again tomorrow but am terrified. I do also have issues with anxiety and agoraphobia and have a particular fear of passing out in public. My fear is becoming unwell whilst still at the dentist and being mentally aware of what's happening and panicking but being frozen and unable to move or communicate. The fear of that happening is really high right now and I feel like I need to understand what happened to my body so that I can get a hold on my anxiety and make myself go (the dental pain is really bothering me).

    Thanks for reading!
     
  2. Kati

    Kati Patient in training

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    Hello @Oak

    Many patients with ME do not tolerate epinephrine in the freezing. I am one of them. Epinephrine causes the heart rate to increase for a length of time, and it can explain your anxietye during the procedure and your reaction afterwards.

    For me, I had 3 days worth of migraine headache which i never get and a 6 weeks profound relapse. Subsequent dentist visits were uneventful as long as no epinephrine was injected. In fact there was a note in my chart saying in big red letters: 'No epinephrine: do not even sneak it in'. Quite telling, isn't it?
    Well despite telling the assistant and the dentist 'no epinephrine' the last time I went for a procedure, the dentist 'sneaked it in'- he actually reached out in the cupboard for it. And I had a relapse because of that.

    You need to be very clear with them that you cannot have epinephrine, even 'just a little bit'. You need them to assure you that they won't sneak any. If they can't give you this assurance, then maybe you need to find another dentist, like I did with the dentist that looked after me for 20 years.

    The dentists like to use epinephrine in the freezing because the anesthesia takes much easier, lasts longer and requires less volume to be injected. There is also less bleeding if there is gum surgery. Without epi, some procedures that are longer in duraton will require refreezing halfway. So using epi is very convenient for dentists.

    I hope it helps. Best wishes and welcome to the forums.
     
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  3. taniaaust1

    taniaaust1 Senior Member

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    Get yourself a new dentist (and I suggest to do her a letter telling her she put your health at risk and made you unwell and that you will be going back to her so its on the records.. and will make her think twice before she does that again to some else). Ignoring someone like that and not even telling them you've done this.. well that's not on and could of put you into hospital.

    In my case when adrenaline was used (not the dentist fault as I didnt know it could cause complications with ME at the time) I got such a severe reaction from the adrenaline that an ambulance was almost rung.

    I was left unable to walk out right after my treatment, it look me an hour? before I'd stopped violently spasming and shaking from the adrenaline and had leg control back to walk safely... and it caused me a after effect for days (in my case severe pain where it had been injected into which was worst pain then the 4 gaping holes were my wisdom teeth had been actually pulled from).

    OMG if someone did that to me and gave that to me again and ignored what I said, I dont know what I'd do. If she does this again you may even get a worst reaction next time.
     
  4. overtheedge

    overtheedge

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    For what it's worth my uncle, who incidentally doesn't have CFS, had a hypnotherapist put him in a trance for the duration of his wisdom teeth extraction. Don't know much about it myself but it shows there are alternatives.
     
  5. Gingergrrl

    Gingergrrl Senior Member

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    @Kati, you are very smart to do this and hoping that this note is NEVER ignored. I do not tolerate Epi either b/c of POTS and other issues and my new dentist 100% understands and agrees with this (but I can't proceed w/needed dental work for other reasons at present).

    I would have to agree with Tania and if you have told the dentist more than once that you do not tolerate Epi and they have "snuck it in" (truly for their own convenience and no other reason), this is not only disrespectful of you as the patient but is dangerous. What if they snuck something in that you were allergic to and it is caused anaphylaxis (not the Epi but something else in future). Is switching dentists an option @Oak?
     
  6. Kati

    Kati Patient in training

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    It was not me who put the note there, it was the dental assistant. The fact that she wrote "Do not even sneak it in" is rather self incriminating, suggesting that the dentist sneaks it in without the patient knowing and more importantly, without patient consent.
     
    Last edited: Jun 7, 2017
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  7. Starlight

    Starlight Senior Member

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    Sorry to hear of your experience . unless she assures you beforehand that she will use the correct one I would change the dentist. Could you phone a day or two before appointment to clarify that she will use the correct on,and if she agrees remind her again when you visit. I always remind my dentist just in case. They use the one without epinephrine for patients with high blood pressure so it is quite commonly used. Hope you get on well this visit.
     
    Gingergrrl likes this.
  8. Gingergrrl

    Gingergrrl Senior Member

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    Agreed and that is very incriminating for the dentist and thank you for clarifying.
     

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