1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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"Bad Blood: A Cautionary Tale"

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by shannah, Dec 2, 2010.

  1. shannah

    shannah Senior Member

    This seems well timed for us with the upcoming BWG meeting in a couple of weeks.

    from The Washington Times:


    Documentary traces children's AIDS
    Hemophiliacs infected by 'bad blood'


    "BADBLOODDOCUMENTARY.COM Marilyn Ness, director and producer of Bad Blood: A Cautionary Tale, says the 1980s discovery that AIDS was being transmitted by a blood product used to manage hemophilia in children became the pivotal turning point in all HIV/AIDS ... efforts.

    on page 2:

    "The tricky issue is to balance blood safety - especially in light of concerns about blood-borne diseases like dengue fever or a retrovirus like XMRV, which seems to be linked to chronic fatigue syndrome - with donor policies, which necessarily discriminate against people based on medical conditions, travel histories and personal behavior."
  2. George

    George waitin' fer rabbits

    South Texas
    Nice, I like how they slipped the XMRV in there and it's link to ME/CFS like it belongs together. (grins) Thanks for finding and sharing.
  3. Mark

    Mark Acting CEO

    Sofa, UK
    And I like the way references in the press seem more likely these days to say things like "XMRV, which seems to be linked to chronic fatigue syndrome" rather than irritating stuff like "it was linked with chronic fatigue syndrome in one small study but other researchers have failed to confirm the link".

    I still think there should be a special kind of prize for that newspaper article that said something like "3 more studies recently found no evidence of XMRV in chronic fatigue syndrome", where one of those 3 was a positive PC study, another was a study of AIDS patients, and the third was a 0/0 study with about 20 CFS patients as part of a much larger cohort.

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