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B2 Riboflavin and me

Discussion in 'General Treatment' started by justy, Mar 19, 2012.

  1. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Midwest, USA
  2. taniaaust1

    taniaaust1 Senior Member

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    I was at my CFS specialist today and while there asked him about B2 testing. I was hoping to get tested for B2 before I tried it. He said the B tests werent very accurate at all and hence didnt recommend testing.

    He said he could see no harm in me taking it if I wanted but didnt think it would do anything for me. (I told him we'd been discussing it on the ME/CFS forums and he said he hadnt heard of it helping ME/CFS at all before).

    I will trial it at some time but will wait till I finish the other drug trials Im doing right now. He's upped my dose of Amitripyline.
  3. taniaaust1

    taniaaust1 Senior Member

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    oh sorry justy.. I just replied to anothers post and then seen this one of yours.. I'll try to stay on right track of your thread in future.

    ***curious to keep following how it works out for you***
  4. justy

    justy Senior Member

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    Hi Tania - its ok, i was more talking about the discussion of setting up a seperate forum, how to do a group on facebook etc. I dont mind people discussing anything really - but this was intended as a seperate thread to the DP ones.
    I wonder if testing for B2 is so unreliable because we dont store much but use it as we get it?
    Take care, Justy.
  5. Mark

    Mark Acting CEO

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    I've moved several posts from this thread to the Hair Mineral Testing thread as they were off-topic. If you find any I've missed that belong better on that thread, please report one of them and list the post numbers to move, and we can move those too.

    Disentangling the two threads isn't easy, and in some cases there isn't an ideal solution, and I realise this might cause a little confusion, but I've done the best I could.
    taniaaust1 likes this.
  6. Asklipia

    Asklipia Senior Member

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    Hi merylg,
    I shall soon run out of B2 and don't find any 25 mg tablets at a good price. Does the Solgar 50 mg have has a ridge in the middle to help divide it?
    Thank you and best wishes!
    Asklipia
  7. merylg

    merylg Senior Member

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    Hi Asklipia, no it doesn't, but it does break up easily & cleanly. I do find it has a strange smell & taste though, which I guess is from fillers? So check you are OK with those. The 100 mg B2 Nature's Own (Australian brand) tastes better - contains no additives. But I have MCS so am sensitive to these things!
  8. rlc

    rlc Senior Member

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    Hi Justy, RE
    Have any of your doctors checked your vitamin A levels?? Vitamin A deficiency causes night blindness and weakened immune systems see http://nutrition.about.com/od/therapeuticnutrition1/a/Vitamin-A-Deficiency.htm

    The right diagnosis site says that night blindness, fatigue and abdominal symptoms are caused by Celiac Disease, Cirrhosis of the liver, Malabsorbtion syndromes , Obal syndrome and Woodhouse Sakati syndrome see http://symptoms.rightdiagnosis.com/cosymptoms/abdominal-symptoms/fatigue/night-blindness.htm

    I would imagine that even an NHS doctor has ruled out Cirrhosis of the liver, and it can’t be Obal syndrome or Woodhouse Sakati syndrome because they don’t fit. Which only leaves Celiac and malabsorbtion syndromes, unfortunately there are a lot of causes of malabsorbtion syndromes see http://www.rightdiagnosis.com/m/malabsorption/intro.htm

    If you can get your doctor to test vitamin A and it is low it might help convince them to get their A into G and send you to a gastroenterologist and get the tests you need like endoscope etc. I feel that with your abdominal symptoms and inability to absorb iron that there is almost certainly some kind of malabsorbtion syndrome going on, and the sooner you can get to a gastro to work which one it is the better.

    Hope this helps

    All the best
  9. Asklipia

    Asklipia Senior Member

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    Thank you! Nature's Own is 100 mg, I would have to cut it in four. Is it easy to cut (no crumbles)?

    Lots of good wishes. We both had MCS but now are OK for most things, the only one left really is air disinfectants in public places our minds go blank suddenly, then we sweat a lot and have nausea, then next day we are fine.
    This could be linked to our fake folate problem as air disinfectants are often glutaraldehyde.
    Good luck for everything!
    Asklipia
  10. merylg

    merylg Senior Member

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    Yes the Nature's Own 100 mg B2 is a large tab easily evenly divided into four.
  11. Asklipia

    Asklipia Senior Member

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