The Call for Opposition: Challenging the P2P and IOM Processes
In our second article on how to react to the publication of the draft P2P report, Gabby Klein provides her view of why she and a large group of advocates and patients are continuing their protest of the government’s ongoing control and manipulation of our disease via their processes...
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autoimmune/anakinra

Discussion in 'General Treatment' started by rebar, Oct 11, 2012.

  1. rebar

    rebar

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    I may have a chance to try Anakinra, an IL-1 antagonist, a drug used for RA and a few other autoimmune disorders. I believe the drug has recently been used by Dr. Klimas and last week it was mentioned in the treatment discussion at the recent CFSAC meeting. Any thoughts, and or experience with it? Thanks in advance, this is an essential site, and although this is my first post I have avidly read and kept up with this community.
     
    ggingues likes this.
  2. Nielk

    Nielk

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    Queens, NY
    Hi rebar,

    I have no answer for you regarding Anakinra but, I just wanted to welcome you to the forum.
     
  3. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
    I am not familiar with this drug either, but wanted to mention anohter Immune Modulating drug that is perhaps less harsh? LDN (low dose Naltrexone). Vitamin D is also an immune modulator. How are your levels? Don't believe the mainstream numbers, even if they say you are fine, it's an inexpensive supplement. Check out Dr. Mecolas website for the values you should aim for.

    GG

    PS Welcome to the forum, like the name, pour some concrete before?
     
  4. Snow Leopard

    Snow Leopard Senior Member

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    I don't know anyone who has taken it.

    It is an experimental drug for people with ME or CFS and so you need to be mindful of side effects.

    But there is only one way we will find out whether it helps patients: if patients like yourself actually try it.

    If you do try it, keep us updated. :)
     
  5. Anne

    Anne Senior Member

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    @rebar : Did you try Anakinra? If so, how did it go?
     
  6. rebar

    rebar

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    Anne, never did.
     

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