Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data
The Microbe Discovery Project outlines an ambitious new study by top researchers that has collected patient samples, but needs desperately funds to complete the work.
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Authors suffering from CFS/ME

Discussion in 'Information and Resources' started by Dr.Patient, Jul 10, 2014.

  1. justy

    justy Senior Member

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    Nasim Marie Jafry - 'The State Of ME' which is a loosely autobiographical novel.

    She was nominated for the Scottish Asian Womans award this year, but had to pull out from the interview process due to ill health.

    More here:
    http://velo-gubbed-legs.blogspot.co.uk/
     
    Dr.Patient likes this.
  2. CFS_for_19_years

    CFS_for_19_years คภภเє ɠรค๓թєl

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    ProHealth just came out with a list of celebrities with ME/CFS:
    http://www.prohealth.com/ME-CFS/library/showArticle.cfm?libid=19057&B1=EM071614C

    The author of the article, Erica Verrillo, is herself an author.
    Here are the celebrities:

    Laura Hillenbrand, Author
    Keith Jarrett, Musician
    Michelle Akers, Athlete
    Blake Edwards, Film Producer/Director/Screenwriter
    Randy Newman, Composer/Singer/Pianist
    Mama Chill, Rap Artist
    Cher, Actress/Singer
    John Rutter, Composer
    Michael Crawford, Actor/Singer
    Leigh Hatcher, Journalist/Author

    I realize some of these people have already been named; the article has more in-depth information on each celebrity if you want to read more about them.
     
    Dr.Patient likes this.
  3. Jheldt

    Jheldt

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    Does writing articles count? I plan on writing an ebook/book in the future but just write articles now?
     
  4. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

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    No, just books now...sorry...
     
  5. Soundthealarm21

    Soundthealarm21 Senior Member

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    "Cher was diagnosed with Myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) in 1991. ME/CFS is a severe illness that can lead to symptoms that affect the brain and gastrointestinal, immune, and cardiac systems."

    I was just reading on some celebrity (tabloid BS) website about people with chronic illnesses. I found this description of ME/CFS with Cher very interesting. They call it ME, they call it severe, and they say it is a multiple systems illness. This just from some crummy celebrity paparazzi website.

    Does this show an evolution of perception over the years?
     
  6. Tally Pendragon

    Tally Pendragon

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    Hi Dr Patient,
    I've been diagnosed with ME/CFS for over 12 years, and have only been well enough to start writing novels again seriously within the past 2 years, although I've been able to manage a little research here and there along the way.
     
    Last edited by a moderator: Jan 22, 2015
  7. Hope123

    Hope123 Senior Member

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    Dorothy Wall: http://www.dorothywall.com/books.html

    Leonard Jason: researcher of ME/CFS but also known in other fields: https://global.oup.com/academic/product/principles-of-social-change-9780199841851?cc=us&lang=en&

    Maria Mann: Verity Red's Diary

    Julie Rehmeyer: She wrote an article about ME/CFS but she's also a science writer for Wired/ Discover, etc.
    http://www.washingtonpost.com/natio...fff312-d458-11e3-8a78-8fe50322a72c_story.html

    If you define author to mean people who have published, several people who've published in medical journals are personally affected.
     
  8. worldbackwards

    worldbackwards A unique snowflake

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    Earth

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