Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Authors suffering from CFS/ME

Discussion in 'Information and Resources' started by Dr.Patient, Jul 10, 2014.

  1. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

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    Hello everyone,

    I'm trying to put together a list of writers who suffer from or have suffered CFS/ME. Even one book written is enough. This list is not of authors who have written about CFS/ME, but any book written by a sufferer. I will start with a few-

    Laura Hillenbrand
    Jamie Sams
    Toni Bernhard
     
  2. taniaaust1

    taniaaust1

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    Gregg Charles Fisher (both him and his wife got ME) "Chronic fatigue syndrome A comprehensive guide to symptoms, treatments and solving the practical problems of CFS" This book is a very good ME book. It has an updated version. He shares about stuff him and his wife tried among other things.

    Lynn Michell "Shattered Life with ME" A decent ME book too.
     
    Dr.Patient likes this.
  3. AndyPandy

    AndyPandy Making the most of it

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    Alastair Lynch - former AFL player
    Leigh Hatcher - journalist
    Layne Beachley - surfer
     
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  4. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

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  5. Sushi

    Sushi Moderator and Senior Member Albuquerque

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  6. Hip

    Hip Senior Member

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    Dr.Patient likes this.
  7. SickOfSickness

    SickOfSickness Senior Member

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    Howard Bloom
     
  8. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Ken Wilber
     
  9. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

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    Adding Susan Blackmore and Naomi Weisstein
     
  10. AndyPandy

    AndyPandy Making the most of it

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    Australia
    Fiona Agombar
    Alex Howard
     
  11. ahimsa

    ahimsa Sick since 1990

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    Two more names for the list:

    * Elisabeth Tova Bailey (pen name)

    She's the author of "The Sound of a Wild Snail Eating."

    * Floyd Skloot

    He has a chronic illness but I'm not completely sure what his current diagnosis is. He may have a different diagnosis now.

    He is an amazing author and writes everything from poetry to novels. One book that many patients with ME/CFS will like is called "Patient 002." It's loosely based on the Ampligen trials.
     
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  12. Jenny

    Jenny Senior Member

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    Not sure how relevant this is but I've written several books as an academic psychologist - a requirement of academia in the UK!
     
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  13. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

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    Yes, could you please give the list of the books, thanks!
     
  14. MEKoan

    MEKoan Senior Member

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  15. MEKoan

    MEKoan Senior Member

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  16. Tammy

    Tammy Senior Member

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    Erica Verrillo and co-author Lauren Gellman
     
    Last edited: Jul 14, 2014
    MeSci likes this.
  17. Tammy

    Tammy Senior Member

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    oops...........re-read your thread.............you don't want a list of authors/sufferers who have written about CFS/ME??????????? Just other books?
     
  18. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

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    Only people who have suffered ME/CFS- books on any topic, but just written by people who have suffered.
     
  19. Nielk

    Nielk

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    Why?
     
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  20. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

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    I don't know, just feels good, I guess...
     
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