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Australia Officially Bans People Who Have had CFS From Blood Donation

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by V99, Apr 20, 2010.

  1. V99

    V99 *****

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    ESME facebook - Australia considers ME/CFS blood

    This was posted on the European society for ME on facebook.

    http://www.facebook.com/pages/ESME-European-Society-for-ME/326113349124

    This is the article, from The Australian
    http://www.theaustralian.com.au/news/breaking-news/viral-link-to-chronic-fatigue-sparks-blood-donor-review/story-fn3dxity-1225856015325

  2. Francelle

    Francelle Senior Member

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  3. serenity

    serenity Senior Member

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    this is good, yes?
  4. Snow Leopard

    Snow Leopard Senior Member

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    It annoys me when reporters don't reference and especially when they clearly haven't even read the studies they are mentioning....
  5. Megan

    Megan Senior Member

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    See announcement from Australian Red Cross 23rd April

    http://www.donateblood.com.au/news-detail.aspx?IDDataTreeMenu=33&ID=390


    Blood Service updates CFS donor policy


    23.4.2010The Australian Red Cross Blood Service will indefinitely defer donors who have been diagnosed with Chronic Fatigue Syndrome (CFS).

    This follows recent research, describing a possible link between chronic fatigue, and a retrovirus called Xenotropic Murine leukaemia virus-related Virus (XMRV).

    As the Blood Service currently defers donors who have CFS, this change will delay their return to donating until there is more scientific literature on the possible viral link.

    The number one priority of the Blood Service remains the safety of Australias blood supply.

    Blood Service specialist, Dr Tony Keller, said eligibility to donate is always a balance between risk and benefit.

    There is at present no test available for CFS or XMRV, but our donor questionnaire alerts us when someone has CFS. Very few donors will be affected by this decision, Dr Keller said.

    The science on this internationally is unclear. The recent North American research findings havent been supported by research undertaken in Europe, and there is currently no Australian research on XMRV.

    We will review our decision in two years time, when further studies into the virus have been done.

    The Blood Service currently has 570,000 donors a year. In the past two years, there have been only 70 donors deferred due to Chronic Fatigue Syndrome.

    We are writing to a small number of donors to notify them of this change.
  6. Megan

    Megan Senior Member

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    What I am wondering about all this is whether these blood banks are just 6 months slow in catching up with the 'Science' article or whether they know something we don't?

    Having said that I wonder if this is all more a PR exercise than anything, especially if blood products are now treated for killing viruses. From a public health point of view I would think the spread of XMRV via sex or other means (I hope not!) would be a far greater concern.

    I also wonder how effective it would be as I have always refrained from donating blood since having CFS 'in case I had something'. I was recently astonished to find my mother who has Fibromyalgia (no CFS) had donated for 20 years throughout this time! It seems to me that people like her, and healthy people with XMRV are probably a far greater threat to the blood bank, as unlike us CFS people they have had less reason to suspect they might have something infectious.
  7. V99

    V99 *****

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    Thanks Megan

    So guys, when is the rest of the world going to pull their finger out? (Translation - Do the same)

    Perhaps Mikovit's talk to the Haematology society made a difference?
  8. fred

    fred The game is afoot

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  9. RustyJ

    RustyJ Contaminated Cell Line 'RustyJ'

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    Major Aussie TV network picks up Blood Bank ban

    This may be of more interest to Australian MEers. Sunrise on Channel 7 had a short news item on the CFS Blood Bank ban. Seemed pretty balanced, though they did refer to a "virus" rather than "retrovirus". I wonder when the other shoe will drop.
  10. jewel

    jewel Senior Member

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    I'm glad major news organizations are covering this, in all and any country. Take care, J.
  11. Gavman

    Gavman Senior Member

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    you need to be on disability allowance to prove CFS is the problem don't you? The fact that only a stupid small letter from an immunologist or specialist will prove you have it.
    I gave blood. Buggered if they knew i had CFS. Its not like its taken very seriously in Australia.
  12. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    Agree with u plus alot of people with undiagnosed cfs probably donating blood thinking they are doing a good thing. Maybe we need to advertise as a big group of cfs/me patients that we are all going to donate blood and possibly infect the blood supple with a retrovirus unless the government pull their finger out and sort some sort of testing and treatment out.

    cheers!!!
  13. eric_s

    eric_s Senior Member

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    Did you really give blood? And then, did you tell them about it? Did they destroy it again? I'm not sure if i understand what you say correctly.

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