If so what was their response?. I have been prompted to do this by my rapidly declining health so I am going to do this sometime this week. My federal member for parliament is well known in the media Australia wide, so i'm hoping his high profile helps. I am planning on giving him a short personal story, then giving him biomedical evidence that this illness is very serious, studies have shown it is the worst chronic illness you can have, that it causes death and it is not what most doctors think it is. I noticed that it was also mentioned in parliament on the 11th of may this year for awareness day and that is pretty much what the speaker said..