Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Aus ABC: ME/CFS is all in our minds

Discussion in 'Action Alerts and Advocacy' started by ahmo, Oct 23, 2015.

  1. ahmo

    ahmo Senior Member

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    Very disappointing to listen to the generally-interesting All in The Mind radio broadcast guest blithely assert that the most common form imaginary (psychosomatic) illness takes in, eg. North America, is ME/CFS. Maybe she's a known entity here, neurologist Suzanne Sullivan, National Hospital for Neurology and Neurosurgery, London.

    There's a transcript. Her bit starts at 1/2 way, the remarks about ME are probably in the last 10 minutes. A few people had posted responses before I got there. You might want to add your voice.

    http://www.abc.net.au/radionational/programs/allinthemind/imaginary-illness/6847086
     
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  2. Sea

    Sea Senior Member

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  3. Sean

    Sean Senior Member

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    Her name has popped up on the forums before. ;)
     
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  4. SOC

    SOC

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    That tells you everything you need to know.

    And WTH does she know about North America? Doesn't she practice in the UK?
     
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  5. drob31

    drob31 Senior Member

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    Another reason not to trust mainstream media. In the US 6 corporations control all of the media (on tv).
     
  6. minkeygirl

    minkeygirl But I Look So Good.

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    UK seems to have a monopoly on idiots telling is its in our heads and therapy Will cure us. Or if we have some illness CBT and GET is the ticket.
     
  7. sarah darwins

    sarah darwins I told you I was ill

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    Once again, I feel the need to apologise on behalf of the UK :-(
     
  8. ahmo

    ahmo Senior Member

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    Unfortunately, this is our national broadcaster, always accused of 'left-wing bias':rolleyes:. Much of what they do is very good, but this is certainly not the only ill informed presentation.
     
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  9. sillysocks84

    sillysocks84 Senior Member

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    It's probably wrong but I think she needs to experience it.
     
  10. ahmo

    ahmo Senior Member

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    @sillysocks84 if only the whole lot of them became a cluster:lol::smug:
     
  11. sillysocks84

    sillysocks84 Senior Member

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    Yes, how quickly there would be a cure or at minimum an effective management of disease state!
     
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  12. TiredSam

    TiredSam The wise nematode hibernates

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    She has to know about something before pronouncing opinions on it on the radio or in her book? Quick, somebody tell her - she seems completely unaware that that's the way it should work.
     
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  13. Snow Leopard

    Snow Leopard Hibernating

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  14. TiredSam

    TiredSam The wise nematode hibernates

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    At first read I thought that might be a good idea, if I had the MRI it could prove that I didn't have psychosomatic illness. Then I realised that that would mean I had to be in one of the only other 2 categories - perfectly well or faking illness. People with biological illness don't seem to exist in her world.

    And of course guess who would be interpreting the MRI result? Even tests for witchcraft 400 years ago were fairer - at least if you sank to the bottom of the village pond and drowned you could have "I told you I wasn't a witch" put on your gravestone - O'Sullivan's MRI test doesn't even give us the chance of a result as good as that.
     
  15. jimells

    jimells Senior Member

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    Although dismayed at the lies O'Sullivan is spreading around the world, UK patients are grateful she has left the country, and hope she never returns to her clinic.
     
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