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Patient Experience: "What Bronllys taught me about pacing."
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August 8th - Severe ME Understanding and Remembrance Day

Discussion in 'Action Alerts and Advocacy' started by Nielk, Jul 31, 2013.

  1. Nielk

    Nielk

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    The 25% ME group announced August 8th as a day to remember everyone who is suffering or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis.

    http://www.25megroup.org/campaigning_Severe_ME_Day.html

    justinreilly, Valentijn and ggingues like this.
  2. Nielk

    Nielk

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    If anyone is familiar with this group or would be able/interested to draft a short article about this August 8th day for PR, please let me know.

    Thanks:)
    justinreilly likes this.
  3. Nielk

    Nielk

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    If anyone has links for stories about severely ill patients can you please post them here? Thank you. It is imperative that we raise awareness and give a voice to the severely ill.
    justinreilly and Little Bluestem like this.
  4. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    NYC (& RI)
    Sophia Mirza's birthday.
    Little Bluestem and Nielk like this.
  5. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Midwest, USA

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