How we can hijack the media, in four easy lessons
Love it, hate it, good story, bad story... the media are going to keep reporting on ME/CFS no matter what. But isn’t it time that we saw that coverage as an opportunity?
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*August 18* (Today) CDC Continuing Education *CFS*: Emergency Preparedness:

Discussion in 'General ME/CFS News' started by Dolphin, Aug 18, 2011.

  1. Dolphin

    Dolphin Senior Member

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    Interesting find by Marc Fluks:

    Last time I heard him talk, James Jones was a big CBT and GET fan. I also saw where, as a peer reviewer (in an open access journal), he told the authors of a paper that if people got worse from a GET program, it must mean they didn't have CFS! :eek:

    It would be interesting if one or more people listened in.

     
  2. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    Wait a minute...
    Why are they having this?
    Is this a common procedure for other illnesses like MS, arthritis?
    if so, ok, useful :)

    if it's specifically an odd thing just for ME/CFS alone...
    Anyone been watching new series of Torchwood? *evil grin* muhaha!
     
  3. eric_s

    eric_s Senior Member

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    Switzerland/Spain (Valencia)
    That seems a bit strange to me too. They even go so far as to evaluate how we could cope with emergencies, but all these years they have not really tried hard to understand ME/CFS and find a cure (if you look at how much funding they put into it). So, while i think it's good they think so much about our situation, even in the unlikely case of some emergency, why don't they help more with the problems people have every day, and instead try to find solutions for a problem most people will probably never experience.
     
  4. *GG*

    *GG* Senior Member

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    Concord, NH
    So did anyone get to listen to this? Anything of value or note?

    GG
     
  5. Gemini

    Gemini Senior Member

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    Only caught the last 20 minutes... which covered the mind-body theory that stress like hurricane Andrew which struck South Florida years ago can cause ME/CFS and its relapses... cited those studies

    One caller asked if CDC was considering the new ICC definition (answer: they're looking at it) and what their position is on treatment for pain.

    Slides here:
    http://emergency.cdc.gov/coca/ppt/08_18_11_ChronicFatigue_FIN.pdf

    They said the entire call would be posted on their website.
     
  6. markmc20001

    markmc20001 Guest

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  7. ixchelkali

    ixchelkali Senior Member

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    Long Beach, CA
    What a shame, this could have been good. Wouldn't it be something if one day the CDC had a clinician who actually worked with ME/CFS patients teach how to diagnose it, instead of someone who just read the CDC materials about it?

    Oh, well. I suppose that exhausts the CDC's CFS budget for this year...
     

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