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At this point, how likely do you think it is that HMRVs are the cause of CFS/ME?

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Esther12, Sep 28, 2011.

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At this point, how likely do you think it is that HMRVs are the cause of CFS/ME?

  1. 70-100%

    29 vote(s)
    42.0%
  2. 40-69%

    6 vote(s)
    8.7%
  3. 10-39%

    12 vote(s)
    17.4%
  4. 2-9%

    8 vote(s)
    11.6%
  5. 0-1%

    14 vote(s)
    20.3%
  1. ukxmrv

    ukxmrv Senior Member

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    Tate in New Zealand had a delay in even starting research. They had to build a new facility for him at the Uni / Med School and I don't know if he has even begun to look at XMRV in earnest.
     
  2. justinreilly

    justinreilly Stop the P2P! Adopt "ME" & CCC!

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    Can you pls elaborate on this? In Osler's Web Cheney graphed out cases of his patients and he (and/or Johnson) said it followed a classic virus attack rate curve which they characterized as very slow for years then steeply rising for a few years and then slowly descending (after the virus had already caused ME in the 'low-hanging fruit' people).
     
  3. justinreilly

    justinreilly Stop the P2P! Adopt "ME" & CCC!

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    Eric, I totally agree that ME/CFS is much better than CFS/ME for the reasons you state. I do think ME is the best term and "CFS" the worst, so i don't use "CFS" and I urge everyone to do the same and only use ME.
     
  4. Bob

    Bob

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    Hi barb,

    I apologise if my post irritated you.

    It wasn't aimed directly at you personally...

    I was just making a general discussion point, using your post as a starting point.

    So I didn't mean to challenge you personally.

    My post was just part of the general discussion.

    Bob
     
  5. Bob

    Bob

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    I'd just like to make the point that I think this thread is a perfect place to discuss or debate XMRV, and our opinions about it.

    I think that's what Esther set it up for (?)
     
  6. FancyMyBlood

    FancyMyBlood Senior Member

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    I believe it had nothing to do with retroviral stuff. One of his students was looking for biomarkers in ME/CFS and IIRC he was discussing a viral pathway they were looking at. The only thing he said about XMRV was that the subject is highly controversial and he wouldn't really comment any further. This is all from the top of my head, though.

    Also I don't understand the results of the poll. I think it's solely based on wishfull thinking. Don't get me wrong, I really hoped XMRV played out as much as the next guy/girl, but it's dead. We have to accept this fact and start focussing on other options. I also don't put much trust anymore in anything the WPI has to say about XMRV/HGRV. They've become an outcast in the scientific community, and I believe they also should be focussing on other options. Everything they've told in the past is pretty much proven wrong, so it seems it's only a matter of time this HGRV stuff is gonna collapse too.
     
  7. Esther12

    Esther12 Senior Member

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    I actually set it up just because I was really interested in how people would vote - but threads always define themselves. I've probably done more to turn it in to a discussion than anyone else! This could be the perfect place for such a discussion, despite my more limited intentions for it.

    Currently, I'm surprised by both the distribution of the vote (lots of 10-39%), and how many people still think the WPI's work is likely to stand up. I wonder if I did the same poll, but in the 'General' section, rather than the 'XMRV' section, it would get very different results?

    Possibly related to this discussion: I've seen a few places reporting that WPI and associated labs have pulled all testing for XMRV/HGRV/related now. : http://forums.phoenixrising.me/showthread.php?13925-VIP-Dx-XMRV-Test-discontinued
     
  8. barbc56

    barbc56 Senior Member

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    I don't let people irritate me nor mind personal challanges. I do, however, prioritize how I use my energy. :>)
     
  9. barbc56

    barbc56 Senior Member

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    I'm rather surprised, too. It would be an interesting to see if posting the same poll in the general section would show different results. I think it's a great idea.

    Thanks for the link. It looks like this issue has become quite contenscious on the mecfs forum.
     
  10. Bob

    Bob

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    I suppose that "10-39%" is something like: "it's a possibilty, but it's not looking very likely right now."

    (But that's not putting words into people's mouths - it's just my interpretation.)

    I agree that you might get different scores in the general section.
     
  11. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    Science isn't about consensus
    but "real" science gets cloused by ego and money/power etc.
    Eventually the facts, or disaster/profit potential, bulldozes through.
    Just wait, folks, as it takes time for it to get sorted out and with the bias against us from "On High" it doesn't help clarity
     
    jace likes this.
  12. ukxmrv

    ukxmrv Senior Member

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    It's not wishful thinking of behalf of patients who selected the high scores in this poll. I've tried to read every relevant XMRV paper that has come out since the original Science paper. I've also read the BWG paper that just came out.

    Nothing has happened to change my mind that HGRV's could be implicated in CFS and ME. There have been no new arguments put forward in this thread that would make it any difference - just other people's opinions - which is fine with me.
     
    jace likes this.
  13. barbc56

    barbc56 Senior Member

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    So have I, yet we have very different conclusions.

    Anything is possible, but HGRVs implicated in ME/CFS isn't very probable. In fact, highly improbable.

    In Science/Statistics these two terms are very important. :>)
     
  14. Firestormm

    Firestormm Guest

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    Cornwall England
    'At this point, how likely do you think it is that HMRVs are the cause of CFS/ME?'

    Sorry to be dumb, but what's a 'HMRV'? I get lost with all the acronyms - is this one new only I replied thinking it was 'HGRV'?!?!
     
  15. Dreambirdie

    Dreambirdie work in progress

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    I assume it was a typo, and is supposed to say HGRV--as in human gamma retrovirus.
     
  16. Esther12

    Esther12 Senior Member

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    They kept changing names!!! It's not my fault.

    Ah well - it seems that most of us think CFS is likely to be caused by an acronym that I just made up. Whenever we do find out exactly what causes CFS, we should name it 'HMRVs' in honour of this poll.
     
  17. Firestormm

    Firestormm Guest

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    So long as it isn't just me Esther :thumbsup:
     
  18. Daffodil

    Daffodil Senior Member

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    we should name it FKA virus as in fking azzhole virus
     
  19. barbc56

    barbc56 Senior Member

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    What I meant was that HGRVs will not play out as causative of ME/CFS. My theory is that it's something connected to our immune system that is making us react so dramatically to exposure. My first sentence goes by the science as it stands now. My second, of course is an educated guess and IMHO, needs to be investigated.
     
  20. Daffodil

    Daffodil Senior Member

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    well mikoivts has seen the virus budding out of the cells of CFS patients. that counts for something. and i am 110% sure it a retrovirus.
     

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