Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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At Mark's Daily Apple Website -- Interesting ME/CFS Recovery Story

Discussion in 'General Treatment' started by Wayne, Feb 1, 2018.

  1. Wayne

    Wayne Senior Member

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    I just ran across this CFS recovery testimonial. She credits her recovery primarily on changing her diet, targeted supplements for mitochondria, and overall approach to nutrition...​

    How the Primal Blueprint Helped Me End My Struggle with Chronic Fatigue Syndrome

    In 2000, after an exhaustive round of tests, I was diagnosed with Chronic Fatigue Syndrome. Basically, I had deep and never-ending fatigue with no identifiable cause. Not knowing I had any other choice, I resigned myself to a life limited by my illness. I had to weigh each activity against how long it would take me to recover from it. Something seemingly simple, like taking a hike, could result in days of recovery time. I went from a highly active person who loved hiking and tennis to someone who had to take a nap after weeding for a half hour. In a nutshell, it sucked.

    For nine years I let myself accept that my life would have to suck. Then, in 2009, I came across information from a doctor in the UK who specializes in treating CFS. She had a detailed supplement plan…and she also highly recommended eating Primally to feed our mitochondria. Everything she said made perfect sense to me, so I set about following her plan. I started taking the numerous supplements, and I gave Primal eating a try. Unfortunately, I didn’t educate myself properly about how to eat Primally, so I just gave up the bad stuff and didn’t replace it with the good stuff I was missing. Needless to say, my Primal eating ended quickly. I had crazy cravings for bread, and because I hadn’t paid attention to how my new way of eating was making me feel, I simply gave up the Primal eating. I did keep on the supplements, though, and they helped enormously! I went from not knowing if I could get out of bed in the morning to at least being able to get up without wondering if I was really sick or just having CFS issues.

    Jump forward almost three years – this past March. I embarked on a food elimination plan for 28 days, just to see what would happen. After about two and a half weeks, I noticed a HUGE difference in how I felt. I actually had – gasp! – ENERGY. The brain-fog vanished. I could concentrate on tasks for long periods of time. When I got home from work, I didn’t collapse into a puddle of exhaustion on the couch. What could possibly be in my diet to have caused me to suffer from chronic fatigue for so many years?

    When I started the food-testing part of the plan, I got my answer: gluten and sugar. My reaction to them was almost instant, with the return of the brain-fog, sore muscles, headaches, and fatigue. There was no way to argue with my experiment: gluten and sugar had to go! So I started researching Primal eating again. Thank goodness, this time I found sites like MDA and Balanced Bites…resources to help me understand where I went wrong the first time and how to do it properly this time.

    [​IMG]

    Since March, I’ve lost about 15 pounds – mostly inflammation weight, according to my doctor – and have gone from wearing size 10/12 to size 4/6…and some of those size 6s are starting to feel big now, too!

    But the best part?? ENERGY! I genuinely had forgotten what it felt like to not be in a fog of exhaustion all the time. Pre-Primal, I could manage to work a full day and *maybe* run an errand after work (I generally made excuses for myself about why I could skip the errand, though). Now? Well, here’s an example of what I did one day last week: worked all day, ran two errands, came home and took care of my cats, mowed my lawn, fixed dinner, and put together breakfast and lunch for the next day! That would have been utterly unthinkable for me 6 or so months ago. Now, it’s normal.

    Going Primal has absolutely given me my life back! When I was first diagnosed, I never would have thought that my diet was to blame. Such a simple fix to make my life worth living! I do wish I’d been successful going Primal three years ago, but I am so very grateful that I finally discovered my cure. Thank you, Mark, for all you do to help people like me make amazing changes in their lives! Now that I understand what Primal can do for me, I’ll never look back.

    Amy
     
  2. Bansaw

    Bansaw Senior Member

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    How does Primal eating differ from Paleo?
     
  3. Wayne

    Wayne Senior Member

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    Can't really say, as I know nothing about what primal eating entails. I ran across a recommendation for this website this morning, went to it, typed CFS in the search engine, and came up with the recovery story. Wish I could add more, but at this time, I don't know any more than anybody else who reads the article.​
     
  4. Lynn

    Lynn Senior Member

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    I believe they are about the same thing. I have been eating paleo for a few years and am now eating a ketogenic diet because of high morning fasting blood sugar (which went down but is still high). Neither diet which eliminates gluten and sugar has helped the ME/CFS symptoms.

    Lynn
     
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  5. Runner5

    Runner5 Senior Member

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    PNW
    I'll take undiagnosed Celiac for $500 Alex! :p
     
  6. Runner5

    Runner5 Senior Member

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    It's my personal #1 dream to find I can just avoid one or two food items - drop a ton of weight in the process - and be completely cured. *day dreaming* :D
     
  7. Gingergrrl

    Gingergrrl Senior Member

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    This is not a judgement or criticism of anyone but I find that in most of these recovery stories the person did not have POTS or orthostatic issues which prevented them from standing/walking. It sounds like at her worst, the woman in the story could still work full-time and go hiking and even described hiking as "simple"! Her worst is where I can only dream of achieving.

    It seems like in these stories "fatigue" was the #1 problem vs. POTS (with tachycardia, shortness of breath, chest pain, etc, upon standing/walking) which are very different IMO. And I totally get it that this board is for ME/CFS and not specifically for POTS or Dysautonomia so this is not a criticism whatsoever.

    I dream of the day that there is a story of someone/somewhere with POTS (or more specifically Autoimmune POTS which is my diagnosis) who used a wheelchair for many years but is now back at work full-time, able to stand to vacuum, able to walk their dog, able to climb stairs, etc. And hiking exceeds my wildest expectations and is not even on my list.
     
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  8. matt321

    matt321

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    I am well versed with MDA and this approach. It is a significantly important part of improving our health...no matter what ails you. In my recovery thread, I mentioned understanding what is actually going on biologically and then working backwards to rule things out. Eating and living this way may seem foo foo, but it works wonders for allowing the body to reach a state of internal flourishing. Not doing this is leaving things on the table that are well known to be of great benefit.

    I am now an amateur expert and have the before, during, and after blood work to corroborate this approach. It's not a point a shoot or avoid this or that kinda thing. Its a life style. It's about putting your body in a natural state of being for enough time to allow it to heal and regenerate. Try living this way and you might find that not only does it improve your life, but it also turns the lights on (so to speak) about lots of other things.

    This was the corner stone beginning of my recovery.
     
    Last edited by a moderator: Feb 1, 2018
  9. MTpockets

    MTpockets

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    While I totally agree that the way you nourish your body can have a huge impact on health...I have massive doubts as to the ability of diet curing ME/CFS. Prior to getting ill, I was eating a 100% organic homemade, homegrown diet for years. After falling ill, I went on an extensive autoimmune-paleo diet, eliminating any potential triggers, eating to heal my gut and slowly introducing food groups over the course of years.

    While my overall body condition has improved (my hair looks great, my daily stomach pain is gone and my digestive issues are all but gone) but I'm afraid I still need a walker to get from my bed to the toilet, I still have seizures and neurological symptoms, I still spend months bedridden, my ME is alive and well.

    Like Runner5 I am all for there being a diet or lifestyle to fix this...But after 10 years of experimenting, I think I may have tried everything out there. Vegan, check, juicing, check, water fasting, paleo, GAPS, fermenting, raw food, blood type, food combining,Keto, low fat, high fat, low carb, high carb and everything in between. I definitely see the benefits of good nourishment, probably especially for OUR bodies, and personally I believe I would be worse without eating well. But a cure has yet to find me by way of what I put in my mouth.
     
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  10. Eiren

    Eiren

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    Primal is like Paleo except it includes dairy, raw dairy and fermented dairy preferred, for those who tolerate it.

    Theory is that lactose-tolerance-persistence began in humans a really long time ago, and is a quite beneficial adaptation (for those who have it).

    It's mostly a brain-child of Mark Sisson, but it's been around for so long now that it's not limited to him anymore.

    If you read the comments on MDA, Amy herself says she doesn't think it's a magic cure for ALL people with CFS. But it worked for her (which is great) and she thinks it's healthy for everyone (which could be very true, especially compared to a "normal" crap-food diet).

    I've been "primal" for over 5 years now, LCHF. Sometimes "off the wagon" but mostly keeping to the 80% guideline Mark has. Lately I've been more strict, but....yeah, it's not magic for me.

    It is sorta annoying. I search the internet for therapies that could help me out with whatever I have, and it's all "The secret is gluten-free!" I already do that, "The secret is coconut oil!" I already do that too, "The secret is magnesium!" Do that too. And on and on.

    I do plan on keeping to Primal. I don't feel worse when I keep to it. So there's that.
     
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