asthma and dysautonomia

[Bayly]

I had a sudden onset of dysautonomia symptoms during my menstrual cycle this week and noticed that in addition to the "air hunger" feeling after standing longer than my body could tolerate, I experienced hoarseness and an asthmatic cough. I'm still having those symptoms this morning after a nice, long night's sleep.

I'm assuming this is due to a general lack of oxygen.

Do others have asthma and hoarseness due to too much standing?

 

[LaurelW]

I get asthma-like symptoms when my CFS is worse, including my OI. My doc says I have reactive airway, which pretty much goes along with CFS. So it wouldn't surprise me at all.

 

[WillowJ]

I get breathing problems if I don't get to rest frequently in a chair that supports my upper back. I have a positive methacholine challenge for asthma, but I generally cough rather than wheeze.

 

[Athene]

Have you had a chlamydia pneumonia test?
I have found out after years, that it is the cause of my chronic voice-losing and also what was misdiagnosed for years as asthma. It also worsens OI. When it gets particularly bad it also gives me a burning, sore feeling down my windpipe when I inhale.
I have been having antibody levels monitored regularly for the last 6 months (under antibiotic treatment) and the severity of these symptoms corresponds with the level of antibodies. I took antibiotics for 3 months then stopped for 2 so we could find out if the infection had gone - unfortunately it hadn't. However, I had amazing improvement in my OI and POTS and chronic low BP. I am back on antibiotics now and the doctor has promised to keep me on them until it has definitely gone.
Being totally OI free for those months felt truly miraculous.

 

[Bayly]

I'm not familiar with reactive airway dysfunction; although it sounds like I may have it. I'll have to do some reading about that. Thanks!

No, I haven't been tested for chlamydia pheumonia. When I see my doctor next, I'll ask him about it. Thanks so much Athene, Willow and Laurel!

My dysautonomia symptoms have quieted down some and I've been sitting a lot the past few days so I haven't had anymore significant asthma symptoms.

My airway feels tight a lot though. I'll be following up with my doctor about that, too, to see if it's anything I need treat. Peace, Bayly