Discussion in 'Latest ME/CFS Research' started by Dolphin, Oct 18, 2015.
Free full text: http://www.painphysicianjournal.com/current/pdf?article=MjQxOA==
So it's a lot of the same data as another study.
I read the study. Some thoughts:
* CDC criteria for CFS; ACR criteria for FM
* three groups: CFS; CFS+FM; healthy controls (i.e.: inactive, but pain-free and without chronic illness).
* questionaires were SF-36; CIS (checklist individual strength); BDI-PC (Beck Depression Inventory for Primary Care).
* small sample size
* study was funded by ME Research UK
They make it sound as if virtually EVERY CFS patient has widespread and persistent pain, and only part of PWCFS have cognitive impairment. (I'd say it's the other way around!) They also clump CFS and FM together with chronic pain syndrome. As usual. This fits better into their hypothesis of central sensitisation (and the pain focus of their organization 'Pain in Motion').
One interesting conclusion they make is that in future research it would be a good idea NOT to clump together CFS and FM as if they were the same. (Wow what a find!)
In CFS+FM there was a correlation between pain and cognitive impairment. Probably because pain is a prominent feature of FM? When symptoms flare up, they usually all flare up. So I'm guessing when FM patients have a flare up of pain, they'll also have more fibro-fog.
For CFS only patients they didn't find a clear correlation between pain and cognitive function. Probably because pain is not a main symptom in CFS?
This makes me scared: apart from GET are they going to invent something called GCT, Graduated Cognitive Training? A group therapy where you gradually solve more sudoku puzzles so your cognitive functioning improves?
Sedentary lifestyle, housebound, bedridden, tomayto, tomahto...
Patients had to get to the place where the study was held, which already accounts for excessive physical exertion for many/most CFS patients.
Throughout the study they talk about cognitive impairment, yet in the conclusion this becomes mental health... What to make of it?
A generally underwhelming study. As per usual.
@Dolphin The fact that they made two papers out of one study which already had too small a sample size to begin with makes me wonder. In the latest months these same people have been publishing studies like there's no tomorrow. I think this has to do with the fact that there is another governmental report coming up where they're going to compare the biomedical approach (and its respective published studies) to the BPS approach (and its respective published studies). This reminds me of high school, when we'd make essays longer in page count in an attempt to hide the fact that we had nothing to say about the subject.
more eyeball rolls. One thing I did was endless sudoku puzzles when I could. My stamina continues to worsen and this is more difficult.
Do any of these people ever even try talking to someone with ME or FM. Oh wait patients don't know anything about their own experience.
Nij's stuff always seems quite poor and pointless without being utterly maddening, manipulative and vile. It's a bit sad that ME Research think he's the best person to fund.
Well, it seems the bar is set low enough for a limbo contest.
He seems to be very good at talking people into things that fit his agenda but not necessarily anyone else's. I don't trust him one bit.
You mean the kind where you can step or even fall over the bar and win?
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