• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

"Assessing the research potential of access to clinical trial data" (Data Sharing, etc.)

Dolphin

Senior Member
Messages
17,567
The odd person is interested in data sharing e.g. the potential for it to be used to get at the PACE Trial information.

So maybe there is somebody here who is interested in the following.

Assessing the research potential of access to clinical trial data

17 MAR, 2015
tags: Clinical trials, Data sharing
by Wellcome Trust

Access to the data generated by clinical trials is key to realising the full benefits of trials of new health interventions, and a valuable opportunity to generate new insights. There has been much recent discussion of how to maximise the impact of sharing of data from clinical trials, and with our track record of encouraging open access and data sharing, the Wellcome Trust is fully engaged with the issue. To help inform these discussions, we commissioned an independent study to look at research potential of increased access to trial data, and what mechanisms are needed to facilitate it. Will Greenacre, from the Wellcome Trust policy team, discusses the findings…

http://blog.wellcome.ac.uk/2015/03/17/the-research-potential-of-clinical-trial-data/

To be honest, I didn't find this article that interesting. But the file mentioned might flesh out the points a bit more.