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No Longer Naive in the Ways of The Beast
After having lived for years with ME/CFS, Jody Smith learned there's more to this beast of an illness than she realized, and that what might help one person may not help others ...
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As common as diabetes?

Discussion in 'Action Alerts and Advocacy' started by November Girl, Sep 21, 2011.

  1. November Girl

    November Girl Senior Member

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    Texas
  2. Snow Leopard

    Snow Leopard Senior Member

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    Total rates of diabetes are around 4-6% or so in western countries (global prevalence of about 3%), around 5-10% of which are Type 1. Prevalence rates of ME/CFS differ, depending on the case definition etc, but population based studies in the USA have estimated rates between 0.25-0.42%. Which is in the ballpark of the prevalence of Type 1 diabetes, but not diabetes in general.
  3. November Girl

    November Girl Senior Member

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    That's a shame. Oh, wait - it's not a shame that more people don't have CFS! :oops: It would have been a real nice stat to quote the next time some ignorant person referred to CFS as a rare disease. Btw, that ignorant person was the MA in my doc's office - generally very good at what she does, just doesn't know beans about CFS. At the time I gave her the CDC's prevalence estimates and she was sure that couldn't be right. (Of course I forgot to make a note of them, and don't remember now!)
  4. ixchelkali

    ixchelkali Senior Member

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    The American Diabetes Association says there are 25.8 million people in the United States with diabetes. Even the broadest definitions of ME/CFS, throwing in everyone who's been tired for a long time and half the people who are depressed, don't claim nearly that many people. I don't know where the reporter got that one.
  5. November Girl

    November Girl Senior Member

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    It's stated as a quote from the doctor, but I imagine it's a misquote - or partial quote, which is equally as misleading. Over the years, my husband and I have noticed errors in any newspaper article that concerned something we knew a lot about. It's not that the reporters are careless - they just don't get the nuances in most cases.

    ... A sidetrip down memory lane... The first intentional misquote I read was in a political ad. A politician was pictured on the capitol steps and reported to say "I won't vote for any of the governor's programs, even the good ones." I asked him if he really said that. He told me "yes, but I finished the sentence with "unless their good for my district." This was my first lesson in something that was factually accurate, but also a false depiction. I was about 8 years old, and have never forgotten this. I asked him at the breakfast table because the politician was my Dad. He's been gone 15 years, and I still miss him.
    ggingues likes this.
  6. mellster

    mellster Marco

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    I heard/read somewhere about numbers in the range of 11-15 million and more for CFS/ME/FM (plus more if you include undiagnosed or misdiagnosed patients) - so pretty close. Not sure if it was legit, but I wouldn't be surprised by those numbers.

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