The Call for Opposition: Challenging the P2P and IOM Processes
In our second article on how to react to the publication of the draft P2P report, Gabby Klein provides her view of why she and a large group of advocates and patients are continuing their protest of the government’s ongoing control and manipulation of our disease via their processes...
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Artists, Creative people

Discussion in 'Action Alerts and Advocacy' started by Tommy, Aug 25, 2011.

  1. Tommy

    Tommy

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    Hi, I have had CFS for years, xmrv + by culture. A few years ago I wrote a song with CFS and other circumstances in mind . I was wondering if anyone wanted to use the song .... change title, and create a video with a CFS theme. You can listen to the song by searching on You Tube .... T Boyd .... the song is called .. For Some .... I have another site where you can download the song. Please contact me if your interested in the idea, as a vehicle for education and advocacy. Thank you.
     
  2. alice1

    alice1 Senior Member

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    I'll check it out.Good for you!
     
  3. Tommy

    Tommy

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    Thanks Alice
     
  4. Tommy

    Tommy

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    One idea I thought of today ....... change the title to CFS = Extreme Exhaustion and Pain for Years ..... with a slide show of photos of people with CFS, and their former occupations listed below the photo. I think someone did a faces of CFS a while ago. Anyway, the song might be to general or not right etc ....... just an idea. Thanks .... Tom
     
  5. alice1

    alice1 Senior Member

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    It's really lovely.I wonder if you could link it here.
    I love your friend's voice who accompanies you..you're good together.
    Don't change the title it works.
    Worth listening to everyone.
     
  6. Tommy

    Tommy

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  7. Lou

    Lou Senior Member

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    It's a nice song, Tommy, thanks for posting.
     
  8. Tommy

    Tommy

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    Thanks for checking it out Lou, I hope you, and everyone else out there are doing well. I have had CFS for a long time and have never been involved in advocacy, or education. In fact I do my best not to mention CFS to anyone if I can help it ..... which is unfortunate. I am lucky to have the support of family and friends, even if they don't quite understand the illness. I really appreciate the people that devote their time and what little energy they have, trying to help us all. A diagnosis for CFS got off to a very bad start ( starting with the demeaning name ) with the media, government, and health practitioners. Hopefully that will change soon ..... tom
     

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