Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Articles on the release of the IOM report

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Nielk, Feb 10, 2015.

  1. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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  2. Kati

    Kati Patient in training

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  3. Iquitos

    Iquitos Senior Member

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  4. Denise

    Denise Senior Member

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  5. Dolphin

    Dolphin Senior Member

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  6. Kati

    Kati Patient in training

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  7. Snowdrop

    Snowdrop Rebel without a biscuit

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    Re: Huffpost article

    Dr Rowe at one point mentions a study that suggests that identical twins are more often both diagnosed with CFS than a control group of fraternal twins. I wouldn't mind knowing where that study is found for reference.
     
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  8. Denise

    Denise Senior Member

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  9. Snowdrop

    Snowdrop Rebel without a biscuit

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    Thank -you @Denise
    I've been trying to compile a few different lists to organise information.
    SD
     
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  10. Denise

    Denise Senior Member

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  11. Snowdrop

    Snowdrop Rebel without a biscuit

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    I have been slowly rereading articles that came out on the IOM report.

    Although I have not got far yet I would definitely suggest that a reporter named Haroon Saddique needs to be educated about what is known about this disease (and about real journalism vs propaganda--but that's a separate issue).

    Sadly Mr Saddique writes for the UK news the Guardian. So far the only UK news item I've read. I shutter to think what else is out there in the UK press.

    If there are any takers in the UK up to writing to Mr Saddique or anyone else who is clueless I would suggest the above two links from Denise as well as:

    Meghan O’Rourke-- February 27, 2015. The New Yorker Magazine.

    A new name and wider recognition for Chronic Fatigue Syndrome.


    http://www.newyorker.com/tech/elements/chronic-fatigue-syndrome-iom-report


    David Tuller--February 10, 2015. The New York Times.

    Chronic Fatigue Syndrome gets a new name.


    http://well.blogs.nytimes.com/2015/02/10/chronic-fatigue-syndrome-gets-a-new-name/?_r=0



    Lenny Burnstein--February 10,2015. The Washington Post. To your health blog

    Chronic Fatigue Syndrome is a physical disorder not a psychological illness says panel.


    http://www.washingtonpost.com/news/...ot-a-psychological-illness-expert-panel-says/



    Natasja Sheriff--February 10, 2015. Aljazeera.

    Institute of Medicine calls for renaming of chronic fatigue syndrome.


    http://america.aljazeera.com/articl...ls-for-renaming-chronic-fatigue-syndrome.html

    As well as Charles Shepherds post #3 in the thread BBC covers Hornig/Lipkin research findings.
     
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  12. Iquitos

    Iquitos Senior Member

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    I doubt the readers of US News & World Report know much about ICD-9 codes.

    I like the fact he called for $150 MILLION in research funds. And the rest of his article was very positive for us, enhancing our credibility a great deal in my opinion.
     
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  13. Dolphin

    Dolphin Senior Member

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    (Not a recommendation)

    http://www.talesfromthemadhouse.com/psychiatric-news-the-good-bad-the-ugly-2/

     
  14. Denise

    Denise Senior Member

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  15. Dolphin

    Dolphin Senior Member

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  16. eafw

    eafw Senior Member

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    The guy has got a book to promote, wouldn't give him the publicity. Claims to be making a "damning critique" of psychiatry but fairly clear from his public drivelings so far that he wouldn't recognise said critique if it jumped up and bit him on the arse.
     
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  17. Tom Kindlon

    Tom Kindlon Senior Member

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