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Article: The Stars Begin to Align at the NIH: A CFS Review Panel. For CFS!

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Nov 12, 2010.

  1. Enid

    Enid Senior Member

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    Good things going on for you there Cort - not a "sausage" here. Keep up the good work (if able). We are well on the move now. Amen.
  2. xrayspex

    xrayspex Senior Member

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    hey Willow thanks for all the info
    I remember wondering about yohimbe must have been after reading Biaggioni's research
  3. Cort

    Cort Phoenix Rising Founder

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    Biaggioni really looks interesting. I had no idea he was looking at Rituximab as well - perhaps a hot item for CFS.

    Now for the bad news! Pat Sonnett informed me that that wonderful panel only had 7 grants to review! - a number Dr Klimas called 'pitiful'.:( They only meet three or four times a year.....probably three - that's 21 grants attempted a year - they've got to do better!

    That is the other half of the equation; CFS researchers have to apply as well.....Hopefully Dr. Freidberg has spread the word in at the IACFS/ME that the panel is open for business.
  4. Cort

    Cort Phoenix Rising Founder

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    Here's some info on Dennis Mangan - the CFS Working Group leader at the NIH

  5. Forebearance

    Forebearance Senior Member

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    I wonder if the TMJ researchers are clenching their jaws in frustration about no more dentists on their grant review panel.
    I guess it shows that TMJ used to be considered a more serious problem than fibromyalgia and CFS.
    Thank goodness it's finally time for CFS to be seen as important.
  6. Cort

    Cort Phoenix Rising Founder

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    I'll bet they are. It makes me wonder, actually, if they are doing subpanels or something like that....
  7. WillowJ

    WillowJ Senior Member

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    what is TMJ caused by? doesn't it occur in high instances in FM and ME/CFS? so it should have a strong biomolecular or neurological component, yes? I don't think it's much related to bruxism or anything like that, normally... so I think it should actually be studied by the cell biology people. It would be nice to have one medical (not psychological) dentist, however, for the TMJ.

    Why are there no neurologists? ME/CFS is officially classified as a neurological condition and neurology is vastly under-represented in research. There are a few important studies, but not much recent. Do we think it should be changed to immunological/infectious/rhematological/autoimmune, or do we need to lobby for neurologists?

    Fibromyalgia is a neurological condition as well.

    Let's replace Fillingim and Jones with a dentist and a neurologist, hey?
  8. WillowJ

    WillowJ Senior Member

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    That is bad news. I wonder if those who have the time and energy could email the contact authors from their favorite studies and say something like,
    If anyone does this, please report here so researchers aren't getting multiple emails.
  9. WillowJ

    WillowJ Senior Member

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    my pleasure :)
  10. WillowJ

    WillowJ Senior Member

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    thanks for the info! I hope by gender differences in medicine he's including gender bias which is still a large problem in medicine. A microbiologist/immunologist/molecular biologist studying apoptosis in immunology does sound well poised to understand the complexities of ME/CFS.
  11. Cort

    Cort Phoenix Rising Founder

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    Yes, higher rates than normal of TMJ in CFS and I'm all for the switch :)
  12. Cort

    Cort Phoenix Rising Founder

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    I asked Dr. Freidberg (IACFS/ME President about how to increase grant application rates. This was his reply on the CFS SEP in general

  13. WillowJ

    WillowJ Senior Member

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    For the record, I'd like to change my mind and agree with Tina. Not necessarily that Jones should be on the panel, but that no one, no matter how much he's hardened his mind, is beyond the reach of truth. Everyone is capable of change.
  14. Sean

    Sean Senior Member

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    I wish I could believe that.

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