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ME/CFS and the Magic of the Canine Factor
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Article: The Long Road: "Chronic Fatigue Syndrome: A Novel" Author Returns to 'Health'

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Mar 30, 2011.

  1. Phoenix Rising Team

    Phoenix Rising Team

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  2. rlee8235

    rlee8235

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    What a powerful post! I can't wait to read more. There truly is a dark side to medicine. I've been fighting The Standard Insurance for long term disability and I am certain their criteria is about the same as UNUM. Very Interesting..........
  3. Cort

    Cort Phoenix Rising Founder

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    That just shows how desperate the need to find biomarkers for this illness (or illnesses) so that insurance companies use their tricks to deny claims. As always - we really need more research!
  4. Cort

    Cort Phoenix Rising Founder

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    Merging threads here....

  5. Cort

    Cort Phoenix Rising Founder

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    There is such an ugly side to 'corporate medicine'. I wonder how that insurance exec sleeps at night in his beautiful 11 million dollar home. I wonder if he wakes up in the middle of the night at times in a cold sweat.

    I thought this was amazing

  6. Enid

    Enid Senior Member

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    The dark, dark side of medicine indeed Cort, it all seems to be "coming out the woodwork" now. Just happy to see a long but happy ending.
  7. kurt

    kurt Senior Member

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    She is taking methotrexate ? That inhibits parts of folic acid metabolism, maybe adjusting methylation? Interesting report, thanks Cort.
  8. Cort

    Cort Phoenix Rising Founder

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    Yes, she is still taking methotrexate.....didn't know about the methylation aspect. Dantini does not favor methotrexate because of its possible side effects - but it definitely helped her.

    My question is why did she progress so quickly? Either she's just the right person for this treatment, famvir - which is not used so much with CFS because its mainly used for herpes simplex - is a better drug, methotrexate somehow potentiated famvir's effect or......

    The food allergy aspect as well - most people don't pay attention to that either.
  9. frenchtulip

    frenchtulip Senior Member

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    Very interesting! I have had ME/CFS for close to 30 years. But about 20 years ago, I went through surgery, radiation, and chemotherapy for bilateral breast cancer. For the chemo, I was given a combination of three drugs, one of which was methotrexate. After completing the treatments, the last of which was six months of the chemo, I still had the normal ME/CFS fatigue (I hardly noticed any additional fatigue from the cancer treatments.) Then after a few weeks, I had several months of the best energy I had had in a decade. I have wondered if there was something in the methotrexate or the other two drugs that worked on the ME/CFS fatigue as well as the cancer.
  10. Cort

    Cort Phoenix Rising Founder

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    French Tulip - how interesting! Have you read the article on Rituximab? What you describe is exactly what happened to another set of CFS patients; they underwent chemotherapy for cancer and following the chemotherapy improved greatly! In fact a study is underway in Norway using Rituximab in CFS.

    http://forums.phoenixrising.me/content.php?287-A-Drug-For-ME-CFS-The-Rituximab-Story-possible-chronic-fatigue-syndrome-treatment
  11. carolinetanderson

    carolinetanderson

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    Just spent the entire weekend on the couch because if I moved I had trouble breathing. Doctor thinks it could be methotrexate induced lung injury. Will be getting a chest xray to see what's up. So anyone thinking of taking methotrexate should weight the risks carefully. They are very real.
  12. Cort

    Cort Phoenix Rising Founder

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    Sorry to hear that...but thanks for passing it on...Good luck - I hope it resolves quickly.
  13. pinkytuscadaro

    pinkytuscadaro

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    I had a cousin who had something very similar to CFS who got well while getting cancer treatment.
    Her illness slowly returned after cancer treatment. She must have been on methotrexate or retuximab.
    Pinky
  14. Ninan

    Ninan Senior Member

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  15. searcher

    searcher

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    I know some who combined MTX and valcyte due to a second illness. She says she feels better than she has ever had as an adult and her CFS symptoms have went away. She has had some sever opportunistic infections though, likely due to her weakened immune system.

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