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Article: Opportunity Knocks: $250,000 for WPI in Vivint Contest

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Jun 15, 2011.

  1. Dolphin

    Dolphin Senior Member

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    Yes, I don't think the WPI can start feeling secure yet. I know at least one day there the Conejo Valley Friendship Circle got 1295 votes - more than the WPI ever got in a day (they also did well the day before but I messed up saving the figures). If they kept doing that with the WPI averaging at around 1000 votes a day, they would pass the WPI out.
     
  2. frenchtulip

    frenchtulip Senior Member

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    My husband and I are voting religiously every day for the WPI. I am afraid to vote for ME/FM even though the WPI has a substantial lead in their region. Groups can come roaring from behind if they decide to make a concerted effort to do so. And I am a bit of a skeptic when it comes to believing in the legitimacy of all votes. When groups representing rare health conditions amass huge numbers of votes in just a few days, I cringe. As long as Facebook account info matches email account info, I am not sure there is a way for auditors to spot irregularities. I hope I am wrong, and I do believe the vast majority of organizations abide by the rules. At least for the time being, we will keep voting daily for the WPI and keep our fingers crossed that no group in the Pacific region decides to rally the vote by hook or by crook.
     
  3. cfs info

    cfs info

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    A vote for the National ME/FM Action Network is as important as WPI. The funds will be used to host the IACFSME International conference. Take a look at who's attending http://iacfsme.org/Conferences/2011FacultyProfessional/tabid/469/Default.aspx and the agenda http://iacfsme.org/Conferences/2011AgendaProfessional/tabid/461/Default.aspx. There is also a patient day where we can learn first hand from the experts. WPI will be attending. See http://iacfsme.org/Conferences/2011FacultyPatient/tabid/468/Default.aspx and http://iacfsme.org/Conferences/2011AgendaPatient/tabid/466/Default.aspx.

    These conferences are very important to the scientific community.

    I think both organizations can win if we share the voting.
     
  4. Tuha

    Tuha Senior Member

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    It would be nice to have 2 organisations which can get money. But I think our situation doesnt allow this. If you look at the votes:
    WPI 8626, National ME/FM Action Network 701:
    8626 + 701 = 9327
    Light and Love Home- Vancouver 5398, Be Perfect Foundation 4435
    5398 + 4435 = 9833

    So for this moment our biggest concurents have about 500 more votes so we cannot have 2 organisations in the first place in their regions. Also with experiences from other competitions we already know that there can arrive some organisations from nowhere - so even WPI position is not at all sure. We know that our community is not so strong that if it would be necessary we will bring some thousands votes more.

    This is more problem, why we get only 1000 votes a day when our community is so large. I vote daily for 7 friends and I know that some friends vote also but I am not sure if daily, I know that some other patients brought also a lot of their friends for daily voting. I would say that there is only 200 patients who vote - Its still big mistery for me this small support compare to the big publicity of this competition (it takes 1 minute a day) - its all the time the same problem- till this will not change - its not realistic that we can support 2 organisations.
    sorry, cfs info but I see it like this. but I wish you best of luck with your effort and if you have idea how to find new patients who will vote let us know - we can help you.
    I think this is the only way - to share our 1000 votes would be too dangerous. there is more then 9 weeks to the end of the competition
     
  5. glenp

    glenp "and this too shall pass"

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    I am also voting for the National Organization, I would like to see them get some money also.

    glen
     
  6. cfs info

    cfs info

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    Thanks Glen for your support. We are working on something to get the vote out in Canada. We would greatly appreciate WPI supporters taking a few days to bump up the National ME/FM Action Network so we don't keep losing ground while our plan to get more votes takes hold.

    A vote for the National group is a vote for research and a vote for support of all the scientists around the world that are working to find a solution for us. This organization is responsible for the Canadian Consensus Document. They are vital members supporting out patient community. It's time we supported them and the IACFSME conference. I know WPI supports them as they plan to speak at the conference in Ottawa.
     
  7. cfs info

    cfs info

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    I'm not sure i understand why your adding ight and Love Home- Vancouver 5398, Be Perfect Foundation 4435
    WPI is now 7000 ahead of Be Perfect foundation. We';re only 6500 behind 1st place in the Can division. If WPI gaves us some support to help us with momentum and morale we could easily get up to first place. If we both win our region then overall in the contest we win $200000. WPI is 13000 behind 1st place overall and falling further behind daily, This would mean overall our causes will just win 100000. If we worked together we'd gain the most benefit and win $200,000
     
  8. glenp

    glenp "and this too shall pass"

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    Yes I can see that both would be in first place. I dont know why some would rather have the votes wasted then give them to the ME/CFS National so they could both win $100,000

    http://www.vivint.com/givesbackproject/charity/855
     
  9. Tuha

    Tuha Senior Member

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    WPI is in competition with Be Perfect Foundation, National ME/FM Action Network with Light and Love Home- Vancouver. Regarding the numbers some days ago - if WPI would give to National ME/FM Action Network all votes needed to get in the first place - WPI wouldnt stay in the first place. Now, it would be possible.
    We are talking all the time about the same problem, some people will prefere WPI because they strong believe that they are on the right path with their research. The other group of the people would switch to your organisation but they are affraid that the situation can change and WPI will lose its position - there are still 9 weeks to go - remember that that Conejo Valley Friendship Circle got some days around 1300 votes - if it would be regulary - they would go through WPI easily.
    I see the only solution - to get more voters.
     
  10. SpecialK82

    SpecialK82 Senior Member

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    Hi guys,

    I do think that we need to take a shot at getting the Action Network going in this contest.

    I put out a little analysis of the current situation and a possible plan to move forward on this thread http://forums.phoenixrising.me/show...ly-now-in-Vivint-Round-2!&p=188938#post188938

    (Partial transcript) Basically my plan is:

    Phase 1 - we work hard at hitting groups in Canada, groups with FM, etc. that are not currently supporting the WPI, to support the Action Network. Also, the floaters on this board can start supporting them as well. We build this group up to the 469 + that is needed to stay even on a daily basis.

    Then Phase 2 we ask Andrea if later in the contest, when WPI is unequivocally safe, to throw WPI support to the Action Network for some days in order to close the gap. If we can close it with 1000 votes per day for a week or two we would be in business! Doing this later in the contest will give us the advantage of surprise as well less time for them to respond.

    I think we should start brainstorming some ideas to get big chunks of votes, once we get some momentum it will get easier. Heres some ideas to start:

    Talk to large groups at church, temple, workplaces, etc, share a few minutes of your story (or have a loved one do it for you) and ask for votes. Can pass around a piece of paper to collect everyones email and then send them the link and regular email reminders throughout the contest.

    Contact CFS doctors in Canada and ask if you can send a flyer with instructions to vote that they will pass out to their patients.

    Contact FM groups in Canada.
     
  11. cfs info

    cfs info

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    SpecialK82 I agree with you. It would be great to get more voters for National Grp. For people that don't know about the National grp They spearheaded the Working Case Clinical Definitions, Diagnostic & treatment Protocols for ME/CFS and FM Consensus Documents, known world-wide as the Canadian Definitions and will be host to the IACFSME International Conference for ME and FM in Ottawa Sept 22-25. These efforts are invaluable to the scientific and research communities. So a vote for them is a vote for research. WPI is a supporter of the conference and will be presenting at it.

    I have Dr Stien and Dr Bested in Canada helping to spread the word. We are actively contacting as many places as we can. We need more people to help us. It's just a few of us actively working at it and with ME there is only so much energy per day to devote to it. If there are any Canadians reading this and want to help us, they can contact me at mefmaction@gmail.com to help us coordinate efforts. Thanks
     
  12. SpecialK82

    SpecialK82 Senior Member

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    Great cfs info, glad you have some doctors on board :thumbsup:

    I contacted the IACFSME and the Nightingale Foundation today asking for their support in Canada - they received 11 votes combined yesterday.
     
  13. hope love light

    hope love light

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    I and my husband vote EVERY DAY!
     
  14. WillowJ

    WillowJ Senior Member

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    We're still hanging out in 6th place. I checked out all the charities above us, and most of them are rare visible children's diseases with no treatments (but known causes). I can understand why they are doing well--it's easy to get people to vote for something like that. And they do likely need the money. On the other hand, it's probably easy to get people to donate at bank drives and such, too.

    The fifth place is children's cancer. Another worthy cause. But cancer has so much funding already. And again, easy to raise money for. They don't really need contests like this, except to make family members feel like they're doing something to help.
     
  15. GaryK

    GaryK

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    I am Voting Every Day now. I was dreading making a face book account BUT this a very special reason.

    GaryK
     
  16. Sasha

    Sasha Fine, thank you

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    Good for you, Gary! I dread doing that kind of online registration stuff but in the event I didn't have any problems.

    :thumbsup:
     
  17. Dolphin

    Dolphin Senior Member

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    The IACFS/ME have a chance to get into this contest. Some of us have started voting for them in the last few days - they've been getting around 60 or so votes per day (before that they were only getting 5-10). They need around 250 per day now I think. Perfectly feasible.

    Cort, it'd be good if you could highlight it.

    (I was voting for the WPI but tend to believe they are safe but am watching the daily tallies. But as there are no avatars (I know of) for the IACFS/ME, I thought I might as well keep the other one: some people continuing to vote for the WPI makes me feel more secure in swapping)

    I was voting for the National ME/FM Action Network but don't think they have a chance: they'd need to get around 1500 votes per day and I think they have only once got over 200 votes (220 I think it was) in one day. The National ME/FM Action Network already have enough votes for the draw.

    The very maximum number of charities in the draw is 94 (100 - 1 (overall winner) -5 (regional winners)) so every charity who gets in has a reasonable chance.
     
  18. Dolphin

    Dolphin Senior Member

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    FYI: Just when I send this out, another group in pacific, "It gets better project", puts in a huge jump in one day out of nowhere the biggest jump by any group there so far. It's a bit early to tell whether they can keep it up (occasionally groups have jumped but they have then collapsed in a day or two) and the WPI have such a huge lead on them that their jump still isn't sufficient to meet the daily requirement.

    But I'm tending towards going back to voting for the WPI http://www.vivint.com/givesbackproject/charity/769 .

    The other alternative to me is the IACFS/ME as there is now a gap of 20915 (=29447 - 8532) between National ME/FM Action Network and the leaders in their region. Assuming that gap doesn't change by the end of today, in the last 17 days of the competition, they would need to get 1230 more than the other group who nearly every day get 400+ and have got around 700 before (and their vote might increase if under pressure). So the National ME/FM Action Network needs 1600-2000 or so votes each day when only once have they got over 200 I think (around 220).
     

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