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Article: Now it's up to us! $250 000 dollar for research into our illness?

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Jun 15, 2010.

  1. shannah

    shannah Senior Member

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    I guess this message just received from WPI clears things up.

    "We don't qualify for the program based on our annual budget. We will post an update on Facebook letting people know.

    Thanks for your support."
     
  2. beesknees

    beesknees Senior Member

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    Here is the announcement on Facebook from the Whittemore Peterson Institute.

    We are disappointed to announce that due to financial eligibility requirements the WPI is unable to participate as a recipient in this year’s Chase Community Giving contest. Due to the ongoing expenses related to the work of the WPI clinical research institute, we are still in need of your donations and support and hope that you will visit www.wpinsitute.org to donate directly in support of these vital activities.
     
  3. citybug

    citybug Senior Member

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    NY
    http://apps.facebook.com/chasecommun...f-services-inc

    CFIDS Emergency Services is also in Chase Giving. People had expressed interest in this group that has given money to individuals in dire circumstances, but was out of money for a while.

    When you vote for 5 you get a vote to give to someone.
     
  4. Doogle

    Doogle Senior Member

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    Link isn't working for me.
     
  5. beesknees

    beesknees Senior Member

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    I thought it would be a good idea to make a list of all the CFS charities and how they are doing. There's so many it's hard to keep track.

    1. Patient Alliance (Pandora) 406 votes
    2. New Jersey Chronic Fatigue Syndrome Association- 94 votes
    3. American Association for Chronic Fatigue Syndrome -55 votes
    4. National CFIDS Foundation- 52 votes
    5. National Chronic Fatigue Syndrome and Fibromyalgia Association -27 votes
    6. Blackhills Chronic Fatigue CFS and Fibromyalgia FMS Support Group- 24 votes
    7. Massachusetts CFIDS Associtaion- 22 votes
    8. CFS Knowledge Center Inc. - 20 votes
    CFIDS Emergency Relief- 20 votes
    9. Central Virginia Chronic Fatigue Syndrome and Fibromyalgia Assn -17 votes
    10. Manasotta CFS/ CFIDS Support Group- 15
    Wisconsin Chronic Fatigue Syndrome Association- 15 votes
    11. Connecticut Chronic Fatigue and Immune Dysfunction Syndrome- 13 votes
    12. Tacoma Gig Harbor CFIDS and Fibromyalgia Support -11 votes
    13. CFS/ FMS Support Group of San Antonio -10 votes
    Chronic Fatigue Syndrome and Fibromyalgia org of Georgia- 10 votes
    14. Chronic Fatigue Syndrome Crisis Center- 8 votes
    Greater Tallahassee Fibromyalgia Syndrome and Chronic Fatigue Syndrome- 8 votes
    15. CFIDS and Fibromyalgia Self Help Program- 5 votes
    16. American Blue Ribbon Awareness for Myalgic Encephalomyelitis -4 votes
     
  6. shannah

    shannah Senior Member

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    This orderly listing is very helpful beesknees. Good for you!
     
  7. Dolphin

    Dolphin Senior Member

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    Please vote for PATIENT ALLIANCE NEUROENDOCRINEIMMU DISORDERS ORG FOR RESECH & ADV INC
    http://apps.facebook.com/chasecommu...rineimmu-disorders-org-for-resech-amp-adv-inc

    They looked to be safe for a top 200 position ($25,000) but now the 200th position keeps jumping by a quite lot each day (more votes than PANDORA is getting). We might need 1000 to be safe*. It's at 762 votes at the moment with 200th position being 550.

    Remember: you have 20 votes to play with.

    Please tell others.

    * I previously thought 500 would be what was required so I could be off!
     
  8. Boule de feu

    Boule de feu Senior Member

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    Ottawa, Canada
    I'm a bit worried. :confused:
    What if some of us are not paying attention and are voting for HP Alliance instead? I'm pretty sure this mistake is common...
     

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