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Article: More Community Outreach From the NIH: Mangan Sets up Email Listserve for the ME/CFS Communi

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Jan 4, 2011.

  1. Phoenix Rising Team

    Phoenix Rising Team

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  2. Cort

    Cort Phoenix Rising Founder

    If you want to send this message further use the share button to send it to your Facebook page or Wordpress blog, etc.
     
  3. frenchtulip

    frenchtulip Senior Member

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    I've already signed up and plan to send Dr. Mangan a thank you note for all he is doing for the ME/CFS community.
     
  4. Cort

    Cort Phoenix Rising Founder

    He really is a breath of fresh air and is off to a great start! :victory:
     
  5. sensing progress

    sensing progress Senior Member

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    Really nice to see these actions being taken. Now what the heck is the Trans-NIH ME/CFS Research Working Group? Is it new? And who is Dennis Mangan and what is his Ph.D. in?
     
  6. Nielk

    Nielk

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    The only information they need is our name?
    Will they contact us with more details?
     
  7. shannah

    shannah Senior Member

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    Hi Neilk,

    After signing up, they'll send you an email right away with a confirmation link in it. Just follow the instructions in the email (usually just clicking the link) and it will take you to a site confirming your registration. Whenever they have information to send to the CFS community, you should automatically receive it in your inbox.
     
  8. lancelot

    lancelot Senior Member

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    southern california
    i got an email right back but no confirmation link or instructions to confirm registration. it just came back with some weird computer jargon:

    Summary of resource utilization
    -------------------------------
    CPU time: 0.000 sec Device I/O: 4
    Overhead CPU: 0.000 sec Paging I/O: 0
    CPU model: 4-CPU 3333MHz Xeon X5260 6M (2048M)
     
  9. Nielk

    Nielk

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    Thank you Shannah,

    I understand now. This is for future information that they want to send to people who have registered.
     
  10. Snow Leopard

    Snow Leopard Hibernating

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    South Australia
    edit - turned out to be merely rumor.
     
  11. bullybeef

    bullybeef Senior Member

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    North West, England, UK
    Can you sign up for this in the UK?

    BB
     
  12. shannah

    shannah Senior Member

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    I don't see why not bullybeef. I've been on other similar lists and they have all been international. I signed up for this one without any problems and I'm in Canada.
     
  13. bullybeef

    bullybeef Senior Member

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    North West, England, UK
    Thanks shannah!!
     
  14. urbantravels

    urbantravels disjecta membra

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    What what? Dennis Mangan has CFS himself? How have I missed this information before?
     
  15. Cort

    Cort Phoenix Rising Founder

    Mangan does? I didn't know that... Are we sure?
     
  16. jspotila

    jspotila Senior Member

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    Dr. Mangan does not have CFS

    I emailed Dr. Mangan to check on this rumor, and received the reply below:

    (emphasis added)
     
  17. shannah

    shannah Senior Member

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  18. urbantravels

    urbantravels disjecta membra

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    Whoa! Slow down there, rumor mill!
     
  19. Snow Leopard

    Snow Leopard Hibernating

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    Thanks for the clarification, I apologise for spreading the rumor.
     
  20. justinreilly

    justinreilly Senior Member

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    wow that's pathetic they haven't attended in so long. good for Mangan. at least he's doing some (relatively minor) positive things. gives one a teeny bit of hope!
     

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