Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Article: ..ME since I was eight – and the way I'm treated hasn't changed in 30 years

Discussion in 'General ME/CFS News' started by AndyPR, May 12, 2016.

  1. AndyPR

    AndyPR Senior Member

    http://www.independent.co.uk/voices...eated-hasnt-changed-in-30-years-a7026386.html

    Rest of article at http://www.independent.co.uk/voices...eated-hasnt-changed-in-30-years-a7026386.html
     
  2. Jon_Tradicionali

    Jon_Tradicionali Alone & Wandering

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    Zogor-Ndreaj, Shkodër, Albania
    Know how this person feels.
    Had it since I was 4-5

    I think it's worse never having really experienced life before ME. The past two decades ive been dreaming of what it must be like to not have this.

    The patients that have become ill during middle age, or later, are so very lucky. Even though it might not seem it. They've got 40 years of memories of life. Whilst there's others like me who is still waiting to begin.
     
    alex3619, Dolphin, Comet and 10 others like this.
  3. worldbackwards

    worldbackwards A unique snowflake

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    Earth
    Skippa and green_monster like this.
  4. wastwater

    wastwater Senior Member

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    uk
    Younger onset is rare although there is one in my Axenfeld Riegers group I think,although they don't know it,maybe best to be untainted by ME/cfs if they want to get a better answer
     
  5. Skippa

    Skippa Anti-BS

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    Clearly just a troll.
     
    TiredSam likes this.
  6. TiredSam

    TiredSam The wise nematode hibernates

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    Germany
    I thought the article and the author's attitude was absolutely brilliant.
     

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