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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Article: ME/CFS Orgs Petition the CDC For Change

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Jan 24, 2011.

  1. Phoenix Rising Team

    Phoenix Rising Team

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  2. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    This is hopefully the beginning of ME/CFS orgs banding together to effect change -something that Marly Silverman has promoted for years; given that it's no surprise she started this effort.

    Phoenix Rising is not on the list of organizations that signed the letter; we had a few issues with it that we couldn't resolve but we definitely support the effort and their intentions and hope to be part of further efforts.......

    Congratulations to Marly and the other other organizations for creating the first really integrated advocacy effort that I can remember. And what a great idea with the petition ;)
  3. Grape Funk

    Grape Funk Senior Member

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    USA
    the links are down/there is no place to sign the petition
  4. Grape Funk

    Grape Funk Senior Member

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    USA
  5. Cort

    Cort Phoenix Rising Founder

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    Thanks Grape Funk I fixed the link.
  6. beesknees

    beesknees Senior Member

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    Signed it.
  7. Revday

    Revday

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    Atlanta, Georgia
    Huh?

    "Phoenix Rising is not on the list of organizations that signed the letter; we had a few issues with it that we couldn't resolve..."

    Who, What, Where, Why, and How please?

    :sofa:
  8. Cort

    Cort Phoenix Rising Founder

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    Coming soon! We really do support the intent of the letter and wanted a few issues clarified. Unfortunately that wasn't possible so we deferred. We fully expect and look forward to being part of future letters.
  9. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    NYC (& RI)
    ditto!....
  10. Revday

    Revday

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    Atlanta, Georgia
    Thank you Cort.
  11. Dolphin

    Dolphin Senior Member

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