Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data
The Microbe Discovery Project outlines an ambitious new study by top researchers that has collected patient samples, but needs desperately funds to complete the work.
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Article: Lannie at the Pacific Fatigue Lab: the Repeat Exercise Testing Pt II: the Te

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Nov 16, 2010.

  1. anncavan

    anncavan

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    San Francisco, CA
    I've obviously thought a lot about this. I think it all starts with Lyme, that crashed my immune system, and then the CFS viruses (HHV6 and EBV) infected my heart.

    I think I was bit as a kid, probably after my first bout of chick pox, but before my second. You'll see in my preliminary results blog (that I just posted) they measured I have a really high pain threshold. I always had knee problems, and was sore but chaulked it up to athletics. Looking back I pushed through a lot, especially in my running days. But I just think my pain threshold kept me numb enough to it to think all's normal. But I had a bucketload of symptoms all my life - swollen lymph nodes, constant sinus infections, ear infections, nerve pain in my legs, chest pain, heart racing, extreme HR's during exertion, v low BP, seeing stars when I got up. I just didn't know any diferent... until I crashed at 30.
     
  2. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    That is so interesting - you were able to push through it all your life - until you weren't. It sounds like some pathogen just erupted - like Borrelia ---I wonder how many people are like that - just this underground pathogen that erupts. Of course that's what AIDS is - HIV knocks down the immune system and its the other buggers that take over.
     
  3. Dolphin

    Dolphin Senior Member

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    Thanks for sharing all this, Lannie. :thumbsup:
    Much appreciated. :thumbsup:
     

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