The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
Discuss the article on the Forums.

Article: "I'd love to be able to say 'I have M E' and have people nod in sympathy"

Discussion in 'General ME/CFS News' started by Ysabelle-S, May 9, 2017.

  1. Ysabelle-S

    Ysabelle-S Highly Vexatious

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    Jennifer J, Lolo, BurnA and 29 others like this.
  2. RogerBlack

    RogerBlack Senior Member

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    I am unsure, but I think this is the best mainstream media explanation I've read.

     
    Last edited: May 9, 2017
  3. Gemini

    Gemini Senior Member

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    Thanks for posting @Ysabelle-S!

    Outstanding article, beautifully written!
     
  4. Webdog

    Webdog Senior Member

    The sooner the ridiculously inaccurate name "Chronic Fatigue Syndrome" is retired, the better. I'm quite fed up with it too.
     
    sharks, Lolo, dangermouse and 4 others like this.
  5. hellytheelephant

    hellytheelephant Senior Member

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    S W England
    This is also my story...and I expect the story of most of us on here. Very well expressed article. may 'Chronic Fatigue' be deleted as a term!
     
    BurnA, Gemini, dangermouse and 2 others like this.
  6. Diwi9

    Diwi9 Senior Member

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    Great article, thank you for sharing!
     
  7. Webdog

    Webdog Senior Member

    One section did bother me in an otherwise very good article. I still see the narrative we should be doing graded exercise. And bedbound patients should be out of bed? Should patients like Whitney Dafoe not be staying in bed?

    Cycling and swimming are certainly not appropriate or safe activities during my current relapse, and I suspect many others have similar concerns.
     
    Last edited: May 11, 2017
    Jennifer J, Hutan, SamanthaJ and 3 others like this.
  8. Diwi9

    Diwi9 Senior Member

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    @Webdog - Always seems to be the case...everyone is so concerned about us being deconditioned...just not too concerned about every other aspect of this disease that affects us. ;)
     
    ahimsa, Solstice, Lolo and 1 other person like this.

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