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article: Health Scams target CFS, FM, & MCS

Discussion in 'General ME/CFS News' started by _Kim_, Dec 1, 2009.

  1. _Kim_

    _Kim_ Guest

    November 30, 2009

    Preying on the Desperate, Miracle Cures Hold False Promise by Lourdes Salvador in the American Chronicle

  2. Good article, maybe they found The Lighting Process Website.
    (Also known as 'LP').

    It claims most people with ME CFS are cured in as little as 3 days by altering their thought processes. :mad:

    ''However, we have found that the vast majority of people with M.E report that after the 3 day training program they feel they have either: -

    a) already made a fundamental shift in their issues and that they have the tools to recover fully over time
    or
    b) they feel they have made a complete recovery.''


    Source: Link

    Very cleverly, the 'practioners' who 'teach ME CFS patients the 'skills' how to get better - are the people who have recovered with the 'knowledge' they are selling. (Pyramind selling technique). Never the same single person dishes it out, this reduces reporting rates of unscientific unvalidated medical claims, and it also means the person dishing out the false cure - is not medically qualified. Clever huh? Even if they are reported to medical authorities - they process is not medically validated - and thus how can anyone claim anything back? If someone sells me the ability to levitate for $10, and I fail -can I sue them? Levitation is unrealistic. Curing yourself of an incurable disease that the word's best scientists cannot do, in 3 days by altering your mindset - is unrealistic. The only way to get these cowboys is on false advertising grounds.

    I wonder how much money they've made. They even claim to help MS (nerve damage to the spinal cord) also. Yes you read that correctly.

    ''"We have had 17 clients with MS with a wide variety of symptoms. They are all recovering remarkably well so far, so we have now started gathering evidence tto see if full recovery may be possible and sustainable.''

    Source: Link

    Luckily it's not advertised on this website or discussed, what a SCAM.
    The person who founded it is not medically qualified. His qualifications are not from an establised/validated academic grade University course either.

    Cost? Around $3,000 depending on how well 'tuned in' you make your mind.
    There are many others too knocking around. Reverse Therapy, Mickel Therapy. NB: Note the word, 'therapy'. Mental Health Therapy as a cure.
  3. Mithriel

    Mithriel Senior Member

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    Scotland
    I just loved

    Every patient survey done in Europe and the UK has found that about 35% find graded exercise and cognitive behavioural therapy are either useless or make the illness worse.

    GET and CBT are the only treatments available to patients in the UK and are endorsed by the so called experts and government.

    Their answer to the surveys - the treatment wasn't carried out in the right way.

    Mithriel

    Now I read them again I think they all apply to the treament of CFS/ME (as they call it) in the UK clinics.
  4. Well said, infact in severe patients, a UK Charity report found 90% of ME patients reported it made them worse. :eek:

    Source: Download Word Documents of the findings from patients.

    Here

    Here

    More here

    And here

    Yet we are told it makes us better and this is the only 'evidence based' therapy for our disease! :mad:
  5. Aftermath

    Aftermath Guest

    Nothing New

    Anyone who has had this illness for a substantial period of time knows that this is nothing new.

    A vast majority of even the most highly regarded "treatments" for this illness are nothing more than overblown scams lacking scientific support.
  6. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    australia (brisbane)
    hi

    I walked out of my docs office yesterday with a fist full of scripts and said to him that all we can do is treat the symptoms, he agreed and said thats all we got at the moment.

    He's so right, hard to keep optomistic
  7. What is critical here, is the UK National ME Centre (A team of self appointed 'CFS/ME' experts working in a neuro ward) say they can can get 80% of SEVERE ME patients in hospital better - through these psychological coping methods. On closer inspection they call ME - Fatigue Syndrome.

    Fatigue syndrome is a love child of Simon Wessely and friends, who tried to (and failed) to alter CFS to Fatigue Syndrome without informing the W.H.O (World Health Organisation).

    That's a government run hospital/SYSTEM I'm talking about here, using tax payers money.

    And the UK is not alone in Europe of offering such hocus pocus that seems innocent enough until you're bed ridden in one of their wards, as I have been.

    Then it turns from being able to ignore it here as we do, to real terror - as these lunatics are in charge of your medical care and ignore your suffering which can include heart arrythmias and breathing difficulties.

    So these people are dangerous as well as ethically/morally myopic.
  8. jendeesapo

    jendeesapo Guest

    These strategies are disappointing. People especially from the medical and health organizations should take a look on these very carefully.
  9. Frank

    Frank Senior Member

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    youtube is getting quite full of these scams, they undermine our credibility
  10. dean

    dean

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    "When a disease has a hundred cures, you know that sadly none of them work" An old pearl from an old medical professor.
  11. coxy

    coxy Senior Member

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    I just wish there was some way of stopping people going on youtube saying how wonderful LP is after a couple of weeks of doing it!!
    I to as you know had very good results early on after the process and could well of claimed it was some miracle cure. I had read enough and heard enough from others not to be quite so rash. I was running on pure adrenaline for a good couple of months after doing the process, then i have gradually gone down and down over the last month. I wonder how many of those youtube clip people have since relapsed and are to embarrassed to admit.
    I remember reading that Dr charles shepherd said he'd seen children who'd be able to run on adrenaline for several months to get through exams only to collapse after them.
    I'm sure that's all ther LP is, a huge adrenaline surge to desperate people who want to believe anything could help.
  12. gracenote

    gracenote All shall be well . . .

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    Santa Rosa, CA
    Thanks, coxy, for sharing your whole story. We all want so badly to be well, and we get such tantalizing glimmers of health sometimes, who wouldn't want to believe them to be real?

    I've had similar "good" experiences but they didn't last long enough for me to pass on my "cure." The collapse afterwards are so very disheartening; who wants to believe those to be real?

    The reality of this illness is just so very hard.
  13. jeffrez

    jeffrez Senior Member

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    NY
    Most religions seem to fit those criteria. :D In fact, I have had "religious" people tell me that I am sick because 1) I didn't pray enough, and 2) I did it wrong. :-o
  14. serenity

    serenity Senior Member

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    thanks for this article, i will save it & send it to people when they offer me the latest miracle cure that worked for a friend of a friend.
  15. Daniella

    Daniella Guest

    I know, and frankly speaking, these scams on YouTube seem to be one of the most convincing videos, it makes me want to believe in their marketing strategies.
  16. robertblake

    robertblake Guest

    Too bad that there are people who fake people. I feel sad also for those people who don't have money yet when they get the opportunity to see e medical health representative, they don't know that they are wasting their money.

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