1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Hyperparathyroidism: An Often Overlooked Differential Diagnosis to ME/CFS
Andrew Gladman puts hyperparathyroidism under the microscope, exploring what the disease is, how it can mimic ME/CFS in presentation and how it is treated.
Discuss the article on the Forums.

Article: Fighting the Insensitivity of Others: Ampligen Chronicles ( Trt #10)

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Feb 27, 2010.

  1. Phoenix Rising Team

    Phoenix Rising Team

    Messages:
    650
    Likes:
    1,016
  2. flybro

    flybro Senior Member

    Messages:
    581
    Likes:
    5
    pluto
    Hi Kelvin

    This is a perfect take on what so many of us experience.

    Thanks for telling it how it is, I hope the more of us that do this the harder it becomes ignore.
     
  3. creekfeet

    creekfeet Sockfeet

    Messages:
    553
    Likes:
    2
    Eastern High Sierra
    Hi, Kelvin; You're an absolute thermometer. You've reported the temperature of the disease very accurately. Like a convict in the stocks envying another who is only in shackles, I envy you the fact that you're taking something and it is working. Every other part of this truth of your life is the truth of my life, as well. I do have one sister who is becoming informed and helping a lot in practical ways, though---she's going grocery shopping for me today!---so I'm the one only in shackles in that respect. Thanks, ~ Creek
     
  4. LaurelW

    LaurelW Senior Member

    Messages:
    552
    Likes:
    92
    Utah
    Hi Kelvin, I'm really sorry to hear that your doctor's office is leaving you to fend for yourself. I'm curious if this is an office that participated in the original 516 trial. If so, they should know their way around the block by now. Distressing. From my own experience, (keep in mind that everybody is different), the side effects from the Ampligen went away after 4 months of treatment. I got infusions on Tuesday and Friday, and would be pretty flattened every day but Monday, because the side effects would wear off after three days. They gradually dissipated towards the end of the four months, and after that I experienced only benefits. A lot of my cohort took a long time to notice any benefit from the drug, but I started feeling like I had more energy after only three weeks on it. Not everyone responds to the drug as well as I did, but I hope that you do. After all, it's pretty much the only game in town.
     
  5. Misfit Toy

    Misfit Toy Senior Member

    Messages:
    1,457
    Likes:
    1,383
    This is fabulous and is exactly how I feel. Thank you for writing this. I am going through the same stuff minus the ampligen.
     

See more popular forum discussions.

Share This Page