1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
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Article: CFSAC PROTEST AGAINST FEDERAL NEGLECT OF ME/CFS ON TAP FOR NOV 8th.

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Nov 2, 2011.

  1. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    :cool::cool::cool:
  2. Ember

    Ember Senior Member

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  3. Cort

    Cort Phoenix Rising Founder

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    Tomorrow is the day- our FIRST protest at the CFSAC meeting - and hopefully not the last.
  4. Cort

    Cort Phoenix Rising Founder

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    The prisoners (of the NIH) and the Banner :)


    [video]http://www.facebook.com/photo.php?v=2529620317341[/video]
  5. Cort

    Cort Phoenix Rising Founder

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    Another Video from the Protest: [video=facebook;2529619677325]http://www.facebook.com/video/video.php?v=2529619677325[/video]
  6. Cort

    Cort Phoenix Rising Founder

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    LOVE this Group! [video=facebook;2529603556922]http://www.facebook.com/video/video.php?v=2529603556922[/video]
  7. Cort

    Cort Phoenix Rising Founder

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    Another One![video=facebook;2529607997033]http://www.facebook.com/video/video.php?v=2529607997033[/video]
  8. Hope123

    Hope123 Senior Member

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    I don't know about others but the Facebook link and the videos Cort posted above are not working for me. For the videos, I just get "Video Unavailable" in a blank box.
  9. SpecialK82

    SpecialK82 Senior Member

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    Yep, same problem here.
  10. Dolphin

    Dolphin Senior Member

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    Me too (and I'm logged in to FB, etc.).
  11. WillowJ

    WillowJ Senior Member

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    I'm guessing we would have to be facebook friends with Bob (or at least friends of friends) under the current setting. He will need to change the sharing option to "public" in order to share with us.
  12. WillowJ

    WillowJ Senior Member

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    WA, USA
  13. BobM

    BobM

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    Reno, NV
    CFSAC Videos and Interview

    Just an FYI, I have the Event setting for the Public. I am unclear as to why people cannot access these videos. Here is a Link via youtube with videos from the Demonstration plus one that is an interview by llewelyn King from PBS, He does the White House Chronicles series.

    His Me/CFS videos are titled ME/CFS Alert.

    http://www.youtube.com/results?search_query=cfsac protest&aq=f --- Demonstration Videos

    http://www.youtube.com/watch?v=-pyEvoLc1n8 ---- llewelyn King Interview


    Bob

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