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Graham McPhee spells out some of the cold, hard facts about the dismal state of ME research and politics, and has some suggestions as to what we can do about it ...
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Article: British Medical Journal Published: 11th Feb 2010

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Feb 11, 2010.

  1. Phoenix Rising Team

    Phoenix Rising Team

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  2. Dolphin

    Dolphin Senior Member

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    Don't forget to post comments on the BMJ website http://www.bmj.com/cgi/eletter-submit/340/feb11_1/c738 . It isn't easy of course to get into the print version but it's not to hard to get a comment up on the site.It probably helps to make it look at least a little like a medical letter e.g. have at least one reference. Of course, one easy reference is the article itself (1). Or even a website (2).References:1. Santhouse AM, Hotopf M, David AS. Chronic Fatigue Syndrome. BMJ 2010;340:c738 2. www.samplewebsite.com (last accessed: 11 February 2010)
     
  3. Doctors are not getting an accurate diagnosis, as some things are not 'what the numbers' indicate. They are dealing with multiple autoimmune issues.Consider gamma globulin, Rituxan, whole blood cell transfusions and glyconutrients for help.Another cause of very high white blood cell counts is when there is AIHA. The autoimmune action on the red blood cells stimulates production of white blood cells. Autoimmune Hemolytic Anemia is more common than we realize http://www.valdezlink.com/re/health/anemia/comment.htm#ofExposure to glycol ether 'looks like' the flu.
     
  4. txfriend

    txfriend

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    It is interesting how often 'chronic fatigue' is used in place of CFS. IMHO, the only reason there is unclear treatments is because there is no valid scientific research looking for contributing factors; there is only an assumption of psychological factors, not born out by double-blinded control studies. It is not acknowledged that even if a PWC/ME is depressed, they many times are adversely affected by the doses required to treat it, solely because of the underlying CFS/ME. This is all psychobabble to me.
     
  5. Dolphin

    Dolphin Senior Member

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    BMJ editorial in Irish Medical Times

    http://www.imt.ie/clinical/infections-immunology/defeatism-undermines-treatment.html

    The Irish MedicalTimes is a free weekly newspaper sent to Irish doctors.

    People can comment online.

    If you want to send a letter, send it to: editor@imt.ie.
    Letters start: "Dear Editor".
    Don't forget to put your name and contact number (although most times they won't ring).
    400 words is about the max words I think but probably as you decrease from that, the chances it will be published will increase, especially if you're not a doctor and don't have any fancy title.
     

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