Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Article: A 'Draw' at the Blood Working Group Meeting

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Dec 15, 2010.

  1. Phoenix Rising Team

    Phoenix Rising Team

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  2. George

    George waitin' fer rabbits

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    As the ME world churns

    Thanks for the laughs and the great summary Cort. I needed a good belly laugh and this article of yours did the trick. (big grins)
     
  3. BEG

    BEG Senior Member

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    This is like reading a big "'cliffhanger" of a novel. Wish I could have been a little mouse :) in the room. Looking forward to the webinar.

    Thanks for the summary, Cort.
     
  4. Cort

    Cort Phoenix Rising Founder

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    A little mouse in the room

    :D:D:D:D

    The ME world does indeed CHURN ON - great adjective ​
     
  5. pine108kell

    pine108kell Senior Member

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    Thanks Cort for trying to make sense of all this, even if it still doesn't really make sense. That is the best service Phoenix Rising provides.
     
  6. Rooney

    Rooney Senior Member

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    Yes, thanks so much Cort. Now I actually understand what happened at a science meeting which is an accomplishment for this artsy fartsy girl. (smile)
     
  7. Cort

    Cort Phoenix Rising Founder

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    I really think I should put this on my wall. That is good.
    :D:D:D:D
     
  8. Esther12

    Esther12 Senior Member

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    Reading it so concisely makes it seem even more unbelievable. As Cort mentioned earlier, maybe we've failed to realise how close we may be to the edge of what's scientifically possible. It's easy to forget that we could still be limited by our current technology.

    That being said, it does seem strange that the little ol' WPI seemed to be able to produce such a confident paper for Science nearly 18 months ago.
     
  9. lancelot

    lancelot Senior Member

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    It is truly unbelievable that there is still no consensus just more division and controversy! This has been the unfortunate story of CFS/ME for decades.
     
  10. Cort

    Cort Phoenix Rising Founder

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    I'm going to put up the slides that Val provided - according to them the WPI walks away feeling pretty good actually.

    Yes, XMRV is a microcosm of CFS/ME isn't it over the years...
     
  11. lancelot

    lancelot Senior Member

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    Who is this Stoye? Was there any CDC people there to comment like jim jones?
     
  12. RivkaRivka

    RivkaRivka Senior Member

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    amazing to read the details. thank you. where did you get this info? is there a recording available of this meeting?
     

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