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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Article: 2011: A Look at the Year Ahead For ME/CFS

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Jan 10, 2011.

  1. Phoenix Rising Team

    Phoenix Rising Team

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  2. urbantravels

    urbantravels disjecta membra

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    When, oh when, oh when, will Dr. Singh's work see print and the light of day?

    ETA: Wow, thank you Cort for pulling together all this amazing amount of information! It looks like 2011 has a lot in store!
     
  3. lancelot

    lancelot Senior Member

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    Wow! thank you for the update Cort!

    Things are looking so dam good in 2011! I can see my comeback already! :victory:
     
  4. oceanblue

    oceanblue Senior Member

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    Nice piece, you've clearly been very busy.

    Let's hope this does happen since Case Definition really underpins everything else.
     
  5. anncavan

    anncavan

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    Fantastic review. Thanks Cort!
     
  6. Cort

    Cort Phoenix Rising Founder

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    I like Freeman's Viagra study......I would love to improve blood flow to uh.....my brain :D:D
     
  7. Cort

    Cort Phoenix Rising Founder

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    I have a feeling it may take a little while for Singh......that's what I hear :(:( altho I could be wrong.....I guess it will come when it comes.
     
  8. Chakra5

    Chakra5

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    This was so very heartening. Thanks for this great summery Cort!
     
  9. Cort

    Cort Phoenix Rising Founder

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    Thanks Chakra5 -- does the five refer to a particular chakra?

    By the way, I was informed by Kristen Loomis of the HHV6 Foundation that the HHV6 study did not work out. :(:(
     
  10. Chakra5

    Chakra5

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    Hey Cort

    Yes, the fifth chakra is the throat chakra associated with expression/communication among other things. I have a big mouth...so it just follows from there ;-) I also use it in my web business as the web is a wonderful medium for personal expression
     
  11. SpecialK82

    SpecialK82 Senior Member

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    Cort (mods) -

    Thanks for putting this great list of projects together. Is there any way that we can continue this and keep an updated list in some sort of table format – include such data as:

    - Research project
    - Study timeline
    - Expected date of results
    - Funding requirements
    - If study participants are needed (Contact info)

    We could have a section for projects that are looking for funding, and grants that are looking for projects. I think it would be a great tool to use for advocacy – we can keep track of when results are due and will ask questions when they are late, keep on top of and track all federal funding, CAA, etc.

    Mostly, I would just like a tool where we can find this info quickly without searching through old threads. Do we have the functionality to do something like this?
    Thanks!
     
  12. urbantravels

    urbantravels disjecta membra

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    Ya know, I actually looked at that Viagra study, since it was the only CFS clinical trial I could find in my geographic location.

    And then I thought...well, even though I'm a woman and all...the side effects might be a little...disconcerting. If I weren't currently single I might have different thoughts about it!
     
  13. Cort

    Cort Phoenix Rising Founder

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    They say great minds think alike :victory::victory: I had a similar idea for something else. This is certainly the way to keep the community informed.....
     
  14. urbantravels

    urbantravels disjecta membra

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    Ahahahaha Cort, I know you were responding to SpecialK, but your post looks like a response to mine!
     
  15. Snow Leopard

    Snow Leopard Senior Member

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    Me too, where do I sign up? :thumbsup:
     
  16. urbantravels

    urbantravels disjecta membra

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    Now, now, remember...low blood volume...it may be necessary to prioritize.
     
  17. Enid

    Enid Senior Member

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    Lovely article - thanks Cort - though we had hoped for "the" answer sooner research is gathering pace in so many directions now.:thumbsup: So very much to look forward to.
     
  18. Parismountain

    Parismountain Senior Member

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    Please forgive this mention but some may find the bullseye graphic untimely. I'm okay with it and normally I don't ascribe to pcness but just a mention in case with contemplation you want to keep it or maybe change it. I'm on your side too btw.
     
  19. aruschima

    aruschima I know nothing

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    Are you kidding me !! We have children laying in their beds day in day out, some to weak to even eat and have to be tube fed, and Friedman comes up with such a BS ? This is insult ! I wonder how much more we have to take. Would any Doctor talk of Viagra as a treatment for AIDS patients or cancer patients to decrease their fatigue level, seriously !

    Cort, seriously, from now on please keep Friedman BS as far away from us as possible ! I am furious !
     
  20. Enid

    Enid Senior Member

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    We are all sufferers here - been and going through the mill after many many years - let's celebrate Cort and team who have taken up the fight big time. And given this much appreciated forum for sharing/aiding. Viruses drive Virology - WE only know the reality of it and in illness can guide and is research getting there now - we know at last it is.
     

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