I'm scheduled to see Dr. Lapp annually and a phone call every 3-6 months in between. Seeing him involves travel..by air, can't make the 6hr drive. (Depending on how my financial situation changes, this may become too much of a burden).
I have a regular doc but CFS is a psychiatric illness to him and I just need to push through. He'd love to dose me up on antidepressants and can't understand why I'm unable to tolerate them "I need you to work with me"...lol
. Anyways, he refuses to call it CFS but at least he's treating my Fibro with Provigil...WTH?!
As far as specialists, hematologist said my elevated IGG may or may not be abnormal but it meant the body was "fighting something". Cardiology said holter monitor showed PVC's that may or may not be normal and some bradycardia. Endocrinology found cortisol to be sufficient but a Vitamin D low. Neurology had no clue...MRI with frontal lobe T2 hyper intense flairs of "undetermined significance". I've had no luck with two Rheumatologists. Both said they "didnt deal with CFS. I also had a neuropsych test that showed cognitive impairment...diagnosed as depression
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I've been fortunate to get these referrals. It's been a lesson in modern medicine. Somehow I've avoided being sent to a mental ward...but it's not for lack of trying...diagnosis like parasthesia, somatization, conversion disorder have all been hurled at me. I'm still standing..when I'm not crashing, that is
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