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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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Are you convinced?

Discussion in 'Immunological' started by SaveMe, Feb 17, 2011.

?

ARE YOU CONVINCED THAT CFS IS CAUSED BY XMRV?

Poll closed May 4, 2011.
  1. YAY

    50.0%
  2. NAY

    50.0%
Multiple votes are allowed.
  1. SaveMe

    SaveMe *****

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    read on:Sign giggle:
     
  2. SaveMe

    SaveMe *****

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    I say nay only because other studies have conflicting evidence.

    Researchers need to start looking in the vaccines for clues.
     
  3. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I can't vote cause I don't think it is so simple. If the question were "Are you convinced that XMRV is 'a player?'" I'd vote yes. But how and what it is doing, is not clear yet. I am XMRV positive by culture and feel sure from different treatments that I have tried and how I have responded that its role is significant, but I doubt if there is a single cause. More like a toxic soup with some kind of domino effect.

    At the same time I do think that we probably won't get well without dealing with XMRV as it's effect on the immune system is pretty clear.

    Sushi
     
  4. SaveMe

    SaveMe *****

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    thanks for your input, sushi
    you mention a good pt. i should have clarified the Q
    anything helping xmrv?
     
  5. anne_likes_red

    anne_likes_red Senior Member

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    What Sushi said. :)


    (Bring on more studies!)
     
  6. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Couple of things: a remedy meant for viruses, and now more significantly I am thinking and hoping that GcMAF is helping. I'm getting a lot of die-off symptoms and similar response to others who have gotten "functionally well."

    Sushi
     
  7. SaveMe

    SaveMe *****

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    anne thanks for your input. so you like red?
     
  8. SaveMe

    SaveMe *****

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    sushi you say "die off" what do you mean? please
     
  9. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Die Off is the everyday term for herxheimer reaction. (http://en.wikipedia.org/wiki/Herxheimer_reaction). Basically your detox system get overwhelmed with dead-critter-bodies, and you feel like crap. In the case of XMRV, it may well be the retrovirus envelope, which is known to be toxic.

    Lots of fun stuff to learn here! :eek:

    Sushi
     
  10. alex3619

    alex3619 Senior Member

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    Hi, I am not convinced that XMRV causes CFS. How can I be, there is not enough evidence!

    What I am convinced of, with data as of today, is that XMRV (and related viruses) are the leading hypothetical contenders for a cause. It is my current working hypothesis. It has to be investigated, to prove it or disprove it. Only quality well funded research can do that. So I support XMRV research - how could I not?

    Bye
    Alex
     
  11. SOC

    SOC Senior Member

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    What Alex said.
     
  12. SaveMe

    SaveMe *****

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    Okay, but people are getting tested for it and treating it. I think we are at the point in science to confirm 2 characteristics of CFS; that is, 1. causation is viral 2. virus malfunctions immune system.

    Trials on Valganciclovir at Stanford confirm this. Most (9/12) people with CFS in the trial are having significant reduction in symptoms. I wonder why? Because CFS is caused by a RETRO virus. case closed. Heavy metals, toxins, pesticides, blah blah blah....
     
  13. alex3619

    alex3619 Senior Member

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    Hi SaveMe,

    This I will concede: ME/CFS is probably from retroviruses, and it probably includes XMRV. There is no certainty in science until the studies are done. We also have many other pathogens - treating any of those will reduce symptoms, as will treating any other problems. Treating ME/CFS today is often more like trying to treat a brain tumour with an aspirin - it reduces the pain and inflammation, but it is not a cure. When we understand more, and clinical trials on antiretroviral drugs commence and finish, we will know lot more.

    Bye,
    Alex
     
  14. Sherby

    Sherby Sherby

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    I believe that the WPI are on the right track. What convinces me is the way governmental departments seem to put pressure on any XMRV research not Just the UK or US or other country's.

    I have followed this subject of disinformation in the UK 20 years .
    Barriers are being put in place instead of true research.
    I know that the UK media outlets are only reporting a one sided story.
    And that goes for Parliament. Lies Lies Lies
     
  15. SaveMe

    SaveMe *****

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    i agree shelby its a shame
     
  16. taniaaust1

    taniaaust1

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    I cant vote as my answer isnt either of those.. i really dont know.
     
  17. SaveMe

    SaveMe *****

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    so far the nay-sayers are in the lead haha
     
  18. SaveMe

    SaveMe *****

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    Alex
    I have not posted my name on here, but why do you ask ?
     
  19. alex3619

    alex3619 Senior Member

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    Moderator: Removed name that could be someone's real name, as opposed to membername. is a nick of someone who asked all the same questions in chat, not a real name. The questions you ask are all amply dealt with in the forums, the posts do not advance the debate, and one of your threads made absolutely no sense. You would be better served by using the search function and asking questions on the already existing threads on these topics. Bye, Alex
     
  20. SOC

    SOC Senior Member

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    Alex gives wise advice here.
     

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