ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Are you a twin?

Discussion in 'Active Clinical Studies' started by Nielk, Oct 5, 2011.

  1. Nielk

    Nielk

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    Derek Enlander The Mount Sinai ME/CFS Research and Treatment Center will immediately initiate its first research cohort . This will be in ME/CFS genetic research. We are seeking patients who are twins, if you are a twin or know of a ME/CFS patient who is a twin I would like you to contact me on my email denlander@aol.com
     
  2. FancyMyBlood

    FancyMyBlood Senior Member

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    I'm a (dizygotic) twin, but live in The Netherlands. So unfotunately I don't think I can be of any help, but feel free to let me know if I'm wrong.
     
  3. Nielk

    Nielk

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    Thanks FancyMyBlood. I will find out.
     
  4. spacee

    spacee

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    I am a identical twin

    I responded to Dr. E's request for twins. Have not heard back.

    Also, I told him about the CFS Twin Study I was in back in the 1995 era done by the Univ of Washington.
    He may be looking over their data. I don't know really. Just that he has not responded.
     
  5. Nielk

    Nielk

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    The office has been closed for the past 3 days because of Jewish holiday. I'm sure they will see it on Monday. If you still don't hear from them let me know and I'll contact them. I put Fancymyblood in touch with them.
     
  6. Morgaine

    Morgaine

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    I am a twin, but am in the UK. Happy to help if they are interested in non-US people.
     
  7. ukme

    ukme Senior Member

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    triplet here, but in UK also
     
  8. Nielk

    Nielk

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  9. Morgaine

    Morgaine

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    Thanks Nielk, I've sent an email. :)
     

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