Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Are these symptoms POTS?

Discussion in 'Problems Standing: Orthostatic Intolerance; POTS' started by outdamnspot, Jun 3, 2016.

  1. outdamnspot

    outdamnspot Senior Member

    I'm a little confused over what POTS is, exactly. I know there's the blood-pressure/heart-rate changes on standing, which would presumably cause dizziness etc.

    However, I have these symptoms and was wondering if they fit at all:

    1. Extreme physical weakness (like my limbs are heavy/made of stone); also, some loss of coordination and difficulty walking. Moving my body becomes a burden.

    2. A feeling that I'm sinking into the ground when I walk, or being pulled down by gravity.

    3. Difficulty standing (but also because of the weakness + the sinking feeling).

    4. Constant adrenaline.

    5. Breathlessness/faintness on exertion (running up stairs).

    The symptoms are worse when I haven't eaten, and are also improved sometimes by salt/hydration. Interestingly, when my 'adrenals' respond temporarily to things (caffeine, herbs etc.) before tolerance sets in, a lot of these symptoms improve.
  2. Snowdrop

    Snowdrop Rebel without a biscuit


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