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Are symptoms of ‘hypoglycemia’ in CFS associated w/ hypoglycemia or orthostatic intolerance in youth

Discussion in 'Latest ME/CFS Research' started by Tom Kindlon, Nov 10, 2016.

  1. Tom Kindlon

    Tom Kindlon Senior Member

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    From: The IACFS/ME 2016 Conference Syllabus


     
  2. Valentijn

    Valentijn WE ARE KINA

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    A good example of why the cause of symptoms shouldn't be assumed (and acted upon) without proper investigation. It's not just a matter of useless and frustrating treatments for the presumed problem, but a delay in uncovering and treating the real problem.
     
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  3. anciendaze

    anciendaze Senior Member

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    I went that route when the term CFS had not been invented. That detour ended when I refused to do any more glucose tolerance tests. At that time, long before I heard of PEM, I reported that each GTT left me "wiped out" for three days afterward. This comment went in the medical bit bucket.

    I also had questions about cortisol, which led to a test that showed nothing because it was looking for quantities of cortisol over a full daily cycle. Recent research shows that ME/CFS patients have trouble bringing cortisol up in mornings, and probably down in evenings, when they are "wired". This is what I described as a "phase lag" many years ago. The concept was simply not in medical thinking.

    This is a problem with regulation of endocrine response that does not fit in the "too much/too little" dichotomies.

    The term orthostatic intolerance was not in wide use at the time, and was certainly not considered relevant.
     
  4. Sidereal

    Sidereal Senior Member

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    Hypoglycaemia used to be what some clinicians called CFS before the term was invented. Most people who think they have reactive hypoglycaemia when they get that sudden shakiness/crashing don't actually have low blood glucose; these are autonomic symptoms.
     
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  5. RogerBlack

    RogerBlack Senior Member

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    Blood test kits are very inexpensive.
    I would have loved for my symptoms to be hypos - but alas - glucose meter says no.
     
  6. KME

    KME

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    Really valuable study, I think. I've been alarmed at how quick some nutritionists specialising in ME/CFS are to "diagnose" hypoglycaemia based on symptoms alone, or to simply take a person's word for it that they have hypoglycaemic episodes, when those symptoms could also be those of orthostatic intolerance. (The same symptoms are often interpreted as anxiety by psychologists, -iatrists, -therapists and co.) Hopefully this will lead to more people being guided towards effective treatment of orthostatic intolerance.
     
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