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A disease with two faces? Re-naming ME/CFS
Persuasion Smith covers the bases on the misleading and disreputable name for our disease we've all been saddled with ...
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April 7/8 NIH State of Knowledge Conference - watch online to show our support!

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Sasha, Apr 7, 2011.

  1. thegirlwiththedog

    thegirlwiththedog

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    Ah, finally got it to work again.
     
  2. urbantravels

    urbantravels disjecta membra

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    Los Angeles, CA
    I lost sound at one point, and at another point I had a problem with everything stopping and then jumping forward a second or two, but disconnecting and reconnecting fixed it.
     
  3. Sasha

    Sasha Fine, thank you

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    A Brit! Does anybody know where this guy is based (Dr Friedan, is it?)?
     
  4. Kate_UK

    Kate_UK Senior Member

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    Is this "Roy Freeman, M.D., Beth Israel Deaconess Medical Center, Harvard Medical School Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and the Autonomic Nervous System"?
     
  5. Sasha

    Sasha Fine, thank you

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    Yes, I think it must be - thanks, Kate. I was hoping he might be a useful Brit actually in the UK and available to see patients but no...
     
  6. Rrrr

    Rrrr Senior Member

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    i saw him 100 years ago at Beth Israel hospital and found him completely not helpful as a doctor. he was yet another researcher only interested in using CFS patients to his benefit, that is, to benefit his research studies. but this was not unusual for CFS specialists. maybe he is different now?
     
  7. eric_s

    eric_s Senior Member

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    I only have sound since about one and a half hours ago... :rolleyes: Does anyone else have this problem? Even rebooting didn't help.

    And because i was travelling i missed Coffin and Judy Mikovits, what a shame... at least i will see that part when they post the videos, i hope.
     
  8. Rrrr

    Rrrr Senior Member

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    what did that speaker/researcher -- James Baraniuk, M.D., Georgetown University, Neuroimmunology of Chronic Fatigue Syndrome -- just say? that THC (medical marijuana) inhibits deactivation of tramatic brain injury? what does that mean? (he said he was putting all his hope into this one treatment).
     
  9. eric_s

    eric_s Senior Member

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    LOL, yes, through the disconnects i seemed to hear something like this too. I think he even said that's where his money is or something like that. Don't tell the police :angel:
     
  10. thegirlwiththedog

    thegirlwiththedog

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    Yeah, it's in and out for me. Out at the moment, despite repeated restarts. Very annoying. My guess is that we're hosing them.
     
  11. WillowJ

    WillowJ Senior Member

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    we did know that; Alter and Lo told Coffin this at a BWG meeting previously, but it evidently didn't sink in with Coffin
     
  12. camas

    camas Senior Member

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    As I was listening to James Baraniuk I was thinking 'this guy sounds like he's a little high' and then he brings up medical marijuana as a treatment. lol

    ETA: I apologize for making fun of Baraniuk yesterday. Beside Klimas, he was the only one today to make the point that a big part of the problem is funding. Something to the effect that the money that goes into one longitudinal study on heart disease and results in little useful information would probably be enough find the cause and cure of CFS.
     
  13. eric_s

    eric_s Senior Member

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    That was Judy right now...
     
  14. thegirlwiththedog

    thegirlwiththedog

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    Restarting my router seems to have helped.
     
  15. eric_s

    eric_s Senior Member

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    But their page says there are only 541 people currently watching, so it's not that many. I wonder if it's not possible to set things up in such a way that that sort of number can be handled.

    Thanks girlwiththedog, unfortunately i'm at a hotel, so i would have to go ask them to do that.
     
  16. Rrrr

    Rrrr Senior Member

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    but what does that mean, that THC (medical marijuana) "inhibits deactivation of traumatic brain injury?" that is NOT good, right? deactivating traumatic brain injury is good. but inhibiting deactivation would be bad. no? am i getting this wrong?
     
  17. eric_s

    eric_s Senior Member

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    I didn't hear the exact sentence, but i think you must have gotten something wrong, because it didn't sound as if he was talking about a negative effect.
     
  18. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    Real Media sucks, it's being phased out by most folk for past 3 or 4 years
    ick! breaks up constantly, stops totally...what a pain :(
     
  19. WillowJ

    WillowJ Senior Member

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    who is talking now and why doesn't she know about the follow-up to Black's paper? the one that said, wait, actually the CFS patients got worse and did reach an activity ceiling?
     
  20. anne_likes_red

    anne_likes_red Senior Member

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