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Appt w/ New Doc: Which Research Papers & Documents to Bring to Prove ME/CFS?

G

GodGenghis

Messages
54
I have an appointment coming up with a new doctor who likely is not familiar with ME/CFS. I want to know which research papers, diagnostic criteria, IoM report, documents, etc.. I should bring along with me to arm myself, and to provide as information to an open-minded doctor. Which research papers speak most strongly in favor of the ME/CFS disease model? I plan on bringing the IoM Report Brief, and possibly the ICC Clinical Primer. I want to make sure I can support anything I say with the appropriate documentation so I dont look like a loon. Any thoughts you more wise and seasoned folks have for me are much appreciated.
 
G

GodGenghis

Messages
54
I wasn't able to find this question answered elsewhere on the forum but i'm sure it is commonly asked, so feel free to link me to another thread is that seems most sensible.
 
V

Valentijn

Senior Member
Messages
15,786
I wouldn't worry about bringing supporting evidence for the IOM brief or ICC primer. They either contain citations, or the doctor can look them up to find the longer documents which contain the citations.
 
ukxmrv

ukxmrv

Senior Member
Messages
4,413
Location
London
Which country are you in?

Any further info on the doctor - are they are GP or a Specialist in a particular field?

I'm in the UK and my experience is abysmal. If I do bring proper published papers in with me they get ignored. I've found it only pays to talk about ME with a doctor with known experience in that area who isn't a psych sympathiser.
 
S

soti

Senior Member
Messages
109
I've had bad experiences too. Today to my usual doctor I brought the press release from the ME Association on the ARHQ downgrading of the quality of the evidence for CBT and GET as well as the actual addendum on Pubmed. That seemed to go over well, but then she already believes me.

http://www.meassociation.org.uk/201...bt-and-get-occupy-m-e-website-16-august-2016/
https://effectivehealthcare.ahrq.gov/ehc/products/586/2004/chronic-fatigue-report-160728.pdf (only the July 2016 addendum, it's a long pdf)
 
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