Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
Discuss the article on the Forums.

Appt w/ New Doc: Which Research Papers & Documents to Bring to Prove ME/CFS?

Discussion in 'General ME/CFS Discussion' started by GodGenghis, Jan 31, 2017.

  1. GodGenghis

    GodGenghis

    Messages:
    30
    Likes:
    117
    I have an appointment coming up with a new doctor who likely is not familiar with ME/CFS. I want to know which research papers, diagnostic criteria, IoM report, documents, etc.. I should bring along with me to arm myself, and to provide as information to an open-minded doctor. Which research papers speak most strongly in favor of the ME/CFS disease model? I plan on bringing the IoM Report Brief, and possibly the ICC Clinical Primer. I want to make sure I can support anything I say with the appropriate documentation so I dont look like a loon. Any thoughts you more wise and seasoned folks have for me are much appreciated.
     
    TiredSam and trishrhymes like this.
  2. GodGenghis

    GodGenghis

    Messages:
    30
    Likes:
    117
    I wasn't able to find this question answered elsewhere on the forum but i'm sure it is commonly asked, so feel free to link me to another thread is that seems most sensible.
     
    TiredSam likes this.
  3. A.B.

    A.B. Senior Member

    Messages:
    3,562
    Likes:
    21,596
    Don't bring too much.
     
    Snow Leopard, Hutan and sarah darwins like this.
  4. Valentijn

    Valentijn The Diabolic Logic

    Messages:
    14,072
    Likes:
    43,755
    I wouldn't worry about bringing supporting evidence for the IOM brief or ICC primer. They either contain citations, or the doctor can look them up to find the longer documents which contain the citations.
     
    Snow Leopard likes this.
  5. ukxmrv

    ukxmrv Senior Member

    Messages:
    4,241
    Likes:
    4,121
    London
    Which country are you in?

    Any further info on the doctor - are they are GP or a Specialist in a particular field?

    I'm in the UK and my experience is abysmal. If I do bring proper published papers in with me they get ignored. I've found it only pays to talk about ME with a doctor with known experience in that area who isn't a psych sympathiser.
     
    Zombie_Lurker and GodGenghis like this.
  6. soti

    soti

    Messages:
    97
    Likes:
    292
    I've had bad experiences too. Today to my usual doctor I brought the press release from the ME Association on the ARHQ downgrading of the quality of the evidence for CBT and GET as well as the actual addendum on Pubmed. That seemed to go over well, but then she already believes me.

    http://www.meassociation.org.uk/201...bt-and-get-occupy-m-e-website-16-august-2016/
    https://effectivehealthcare.ahrq.gov/ehc/products/586/2004/chronic-fatigue-report-160728.pdf (only the July 2016 addendum, it's a long pdf)
     
    ukxmrv and GodGenghis like this.

See more popular forum discussions.

Share This Page