Discussion in 'The Gut: De Meirleir & Maes; H2S; Leaky Gut' started by alexa, Jan 17, 2012.
I would love to read update when the treatment progresses
Please let us know how u go!
Got the results.. KDM was right, its a gut bacteriall thing.. no virus or hormonal problems, but lotsssss of strep and other harmful bacteria.. its well worth seeing him, but if you can get an appt with Dr Lewis (although the waiting list is a year), then that would be great too!
So has KDM put you on an antibiotic or what is the treatment?
I am skeptical of the value of Redlabs viral/pathogen testing. I came back negative for EBV, but I know from US testing I am positive. OThers have said the same.
Never used redlabs but i initially tested psoitive for igg antibodies to ebv and a few years later was negative. Reading oslers web, this was common in the tahoo outbreak, they think immune system unable to make antibodies, so doesnt mean u dont have ebv??
not sure if the post i wrote a couple of hours ago came up, but i got my repeat EBV test results and theyre positive. Ive emailed Himmunitas to ask about what to do next as the Redlabs results came back negative
Just heard from KDM.. Redlabs checks for an active virus.. my current results indicated a previous virus which is currently not active.
bedman- i am sensitive to erythromycin but KDM gave it to me as he said its only for a short period of time (8 days) Im not experiencing anything bad as a result
I started KDM's nexavir and b12 a couple of weeks ago and also feel much worse.. the fatigue is horrible and the depression has really hit again (as a result).. KDM said the nexavir shouldnt make u worse, but my dr (Dr Lewis in Melbourne) says that it can make you worse so start on a low dose such as 0.2ml and work ur way up.. thats what i did but it still makes me very sick.. i've only gotten to 1.5ml so far and i feel a lot worse. I did speak to another KDM patient and she said she felt worse at first but much better now.. so there some hope for us i guess
yes guess im going to persevere with the low dose and see if i can increase over time. good luck with your treatment!!
all the best,
I have found that injecting the nexavir in the evening/night helps to reduce the worsening feeling so by the time i get up, its not so bad. I can function a bit better now, after reducing my dose and taking it at night..
hopefully that helps
Yes Ive been doing that too and it seems to help a lot!!
I just happened to read a post tonight about signs of adrenal fatigue and light sensitivity is one (http://www.thehealthyhomeeconomist.com/6-little-known-signs-of-adrenal-fatigue/) . You may also want to google light sensitivity and adrenals further.
What adrenal supplements are you on?
Are you in Melbourne? I assumed so as you see Dr Lewis.
Sorry for the late reply, I haven't checked this particular post for a few days. I have had my HPA axis and adrenals tested by an endocrinologist, and the results came out perfect. I have heard that light sensitivity and the whole erratic pupils thing can be due to neurotoxicity, Dr Lewis said that too.
Are you seeing Dr Lewis or KDM? Yes, I am in Melbourne.
Oh i forgot- Im on AOR Ortho Adapt for the adrenals.. Its pretty good stuff, u can order it into Aus from Canada
just wondering if anyone will be in Brussels on the 10/11 April? I have my second appointment then and it would be nice to meet have a chat with other patients who might be visiting then.
all the best,
You can also try a Google Site Search
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